My first colonoscopy took place at the hospital, so immediately after it was over, I was taken upstairs and admitted. Now, I’d never been sick in my life: being treated with antibiotics for a rash a few months earlier and chickenpox when I was 12 were the only other two times that I received medical care. This, of course, was on a completely different scale. I was taken upstairs to the pediatrics ward.
The first — and only — book available to me when I was diagnosed at the age of 16. It was small, short, and didn’t contain much current information.
Here’s the thing about being in peds as a teen: you’re not a small child, so much of what goes on there doesn’t help you. The staff is used to dealing with common childhood illnesses, and while IBD is not rare, I’d venture to say they didn’t see it very often. In the small community hospital where I was treated, I actually saw very few other children. Once a classmate was admitted for appendicitis and an appendectomy. She, of course, left after a few days. Other than that, I saw mostly young adults in the pediatrics ward. Maybe our community just had healthy kids, or kids who needed specialized care went into Detroit for Henry Ford, or down to Ann Arbor for the University of Michigan.
Over the past few months I’ve seen a strange turn in social media, and not one that I’d like to see continue. There are many dedicated IBD advocates on Twitter and Facebook, most of whom are putting their personal stories front and center in order to bring more awareness about IBD. Being open and honest about something so personal as one’s health is courageous, and for the most part, we stand together to help the newly diagnosed and the uninitiated learn more about Crohn’s disease and ulcerative colitis.
However, there is something going on that disturbs me deeply: the “I’m sicker than you” game, or what I’ve come to call “Crohn’s porn.” Continue reading
I do enjoy a good bathroom. This fun women’s room entry is found at the M&M store in New York. (I also enjoy a good M&M. Or any M&M, really.)
I was using the so-called “courtesy flush” long before I knew it had a name. Flushing something particularly odorous quickly or flushing to mask the sound of flatulence are common reasons for the courtesy flush. You might use this tactic at a friend’s house or even at home, but most often it’s used in public bathrooms, especially those that are not well-trafficked.
Anyone who has inflammatory bowel disease (IBD) has used the courtesy flush. Maybe there are some who couldn’t care less what the person in the next stall hears or smells, but others feel some embarrassment.