Monthly Archives: February 2015

Should IBD Patients Look To Mouse Studies For Hope?

Mouse In A Cage

Aww, the poor mice. Mice studies are important because they are a first step. But they’re just that — preliminary results that may or may not lead to something meaningful for patients.

I often make a joke that when I see a study done on mice or rats my eyes glaze over and I move on. I don’t, really, of course. I read them and will watch future research to see how things pan out, and if more study moves the knowledge further and leads to anything significant.

However, I don’t usually write up a summary or include it in an article as a reference. This is because I’ve learned that most people aren’t interested in reading about mice studies.

The other reason that I don’t often report on them is because they often don’t lead to anything. The mainstream media, however, often gloms on to these stories as if they’re going to change everything for patients. But they don’t, at least, they won’t for a long time. Continue reading

What’s It Like To Go To A Medical Conference?

Digestive Disease Week 2014

Members of the IBD Social Circle, Janssen Biotech, Tonic Life Communications, and gastroenterologists meeting at Digestive Disease Week 2014. I’m in the first row, fourth from the right. Everyone in this photo is an amazing IBD advocate, and I am privileged to have met them and worked with them.

Patients don’t typically get invited to medical conferences. However we are entering a new age of the “patient expert” — highly motivated patients who not only learn more about their disease for themselves, but share their knowledge with others.

In 2014, I was privileged to be invited to attend Digestive Disease Week in Chicago, and Advances in IBD in Orlando, courtesy of Janssen Biotech.

Attending a medical conference, for me, was both thrilling and terrifying, in equal measures. Continue reading