Tag Archives: community

My Spectacular Advocacy Fail

Do you ever feel like the one that sticks out? I do, frequently. I've done my best to make the most of bad situations, but when it's my child that is the one who "sticks out," I don't always react in the most rational, thought-out way.

Do you ever feel like the on that sticks out? I do, frequently. I’ve done my best to make the most of bad situations, but when it’s my child that is the one who “sticks out,” I don’t always react in the most rational, thought-out way.

A man approached me at an event, not an IBD-related one, and asked me what everyone was doing. The event was a walk at a local beach and it happened to be for food allergy awareness.

“This is a walk to raise funds and awareness of food allergy.”

“That’s strange,” he said to me, and made a face of disbelief.

“Why is that strange?” I said.

“Because you think it would be cancer or Alzheimer’s or something.” Continue reading

My IBD Guilt

I’m not exactly sure what to call this feeling, so for a lack of a better phrase, I’m calling it “IBD survivor’s guilt.” This is not to take away from people who have lived through an actual horrific event, and have true survivor’s guilt. This is clearly not even close to being the same thing. But I think I’m probably not alone in this yet-unnamed feeling in the IBD community.

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How do we cope with this grief? I don’t have any great answers. I just deal with it like I do any other emotion connected to IBD.

Continue reading