We think of inflammatory bowel disease (IBD) as being a disorder of the digestive tract, but anyone who has IBD will tell you that it affects the entire body. Something that is often overlooked when dealing with digestive disease is how it affects our emotions. Some people with Crohn’s disease or ulcerative colitis find that there’s one emotion overwhelmingly associated with the disease: guilt. Continue reading
What are your traditions around Thanksgiving? What we eat and how we celebrate Thanksgiving depends on where we live, our ethnicity, and our family traditions. What matters is coming together and remembering to be thankful. Brooke Abbott of The Crazy Creole Mommy Chronicles and IBD Moms tells me about some of her family’s Thanksgiving traditions and how she talks about being grateful with her son. We discuss some of the ways we try to support the IBD community and what we can do better, especially during the hectic and stressful holiday season. Plus, see the end of the show notes for some of Brooke’s recipes!
Inflammatory bowel disease (IBD) tends to run in families but it’s not as simple as being passed down from parent to child. It’s more complicated because of the number of genes that are involved and the fact that it’s the genes plus some “trigger” that starts the disease process. In fact, many people with IBD don’t have a family history of the disease. Even so, it’s worth digging into family history in order to learn if there’s more IBD or immune-mediated conditions in the family.
What is your favorite week of the year? For the kids, counselors, and volunteers at Camp Oasis, their favorite is camp week. Learn more about a summer camp that’s designed especially for kids who have IBD but is also the place where the campers actually feel the most freedom from their disease. Amber visited camp on visitor’s day and talked with campers, leaders in training, and counselors to find out what makes Camp Oasis so special to them.
In honor of World Breastfeeding Week, I thought I’d share some of my favorite products that helped me when I was breastfeeding. “Wait,” you ask, “I thought all you needed was a pair of lactating breasts?” Yes, that’s true, you can breastfeed with nothing besides your breasts and your two arms, but let’s not be martyrs. It’s fine to rely on some items to be more comfortable and make the nursing experience more rewarding. After all, we should do whatever we can to make the time breastfeeding as pleasant as possible. To that end, here are the items that I used — and liked — while I was nursing my two children.
How does IBD impact the family? Couples who are thinking about having children when one or both of them have IBD often have questions about how the disease will affect their family. Amber interviews her 8-year-old daughter and 10-year-old son about how IBD does — and doesn’t — affect their lives.
The second edition of the About IBD Podcast where I talk with 3 women with IBD about their experiences in telling their partners about their illness.
“This is a walk to raise funds and awareness of food allergy.”
“That’s strange,” he said to me, and made a face of disbelief.
“Why is that strange?” I said.
“Because you think it would be cancer or Alzheimer’s or something.” Continue reading
“It would be the death of you to come with me, Sam,” said Frodo, “and I could not have borne that.”
“Not as certain as being left behind,” said Sam.
“But I am going to Mordor.”
“I know that well enough, Mr. Frodo. Of course you are. And I’m coming with you.”
― J.R.R. Tolkien,
Do you feel supported in your daily life, as you navigate your way through your diagnosis of IBD? Support can come in many forms, and you probably have several sources of support, but I think it’s probably rather rare to feel supported all the time.
In The Lord Of The Rings, Frodo the Hobbit is charged with carrying The One Ring. The One Ring, which looks like a simple gold ring, is infused with evil power, and it poisons Frodo in body, mind, and spirit. Frodo’s friend and companion is Samwise, who travels with Frodo to destroy The One Ring before it can fall into the wrong hands. Frodo becomes increasingly unstable during their journey — obsessed with The Ring and, in the end, unable to even walk. Sam carries him. Continue reading