What’s a Twitter Chat?
A Twitter chat is a way for Twitter users to gather together at the same time and talk about a particular topic. In this case, we’re moms who have IBD and we want to discuss clinical trials. Our co-host this month is Clara Health, a group focused on making it easier for patients and families to access breakthrough treatments. By searching for, or clicking on, the hashtag, #IBDMoms and #PatientsHavePower you can follow along with all the posts using that tag. In this way, you can see the conversation and also take part.
You’ve seen the posts: “Click like” or “Retweet” to vote! An interaction with a post is a “vote” and after a certain amount of time the “votes” are tallied and a winner is declared. Magazines may use this type of crowdsourcing to decide their “best restaurants” or a photography web site may use it to choose a “cutest baby” photo.
I’ve been online, running web sites for myself and for others, since 1996 and this type of popularity contest is nothing new. It’s never going to go away because it’s inherent in our culture. It might be something we have to accept, up to a point. However, I take issue with using this type of “voting” for where we are now: choosing a “best” person from the online chronic illness community. Continue reading
Welcome to the year-end wrap up show! I put together clips from my first 14 shows that drop the heaviest knowledge bombs about how life with IBD affects us, our careers, our relationships, and our stress levels.
Do you have an IBD Elevator Speech? I got you, here’s where you can learn to create yours after you listen to Brooke Abbott give hers: www.verywell.com/how-to-create-yo…r-speech-1942452