Tag Archives: goals

June Twitter Chat Promo

June IBD Moms Twitter Chat: Clinical Trials

What’s a Twitter Chat?

A Twitter chat is a way for Twitter users to gather together at the same time and talk about a particular topic. In this case, we’re moms who have IBD and we want to discuss clinical trials. Our co-host this month is Clara Health, a group focused on making it easier for patients and families to access breakthrough treatments. By searching for, or clicking on, the hashtag, #IBDMoms and #PatientsHavePower you can follow along with all the posts using that tag. In this way, you can see the conversation and also take part.

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Vote In Real Elections

Vote In Real Elections, Not Online Ones

You’ve seen the posts: “Click like” or “Retweet” to vote! An interaction with a post is a “vote” and after a certain amount of time the “votes” are tallied and a winner is declared. Magazines may use this type of crowdsourcing to decide their “best restaurants” or a photography web site may use it to choose a “cutest baby” photo.

I’ve been online, running web sites for myself and for others, since 1996 and this type of popularity contest is nothing new. It’s never going to go away because it’s inherent in our culture. It might be something we have to accept, up to a point. However, I take issue with using this type of “voting” for where we are now: choosing a “best” person from the online chronic illness community. Continue reading

About IBD Podcast Episode 10 With Brooke Abbott

About IBD Podcast 10 – Advocacy With Brooke Abbott

Are you ready to tell your story? Your legislators in Washington D.C., in your state, and your home town want to hear from you about how IBD has affected your life and the legislation you care about. Brooke Abbott of The Crazy Creole Mommy Chronicles and Amber tell you how to get started in health activism and how to make your voice heard in our government!
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About IBD Podcast 15 – 2017 Year End Wrap-Up

Welcome to the year-end wrap up show! I put together clips from my first 14 shows that drop the heaviest knowledge bombs about how life with IBD affects us, our careers, our relationships, and our stress levels.

Do you have an IBD Elevator Speech? I got you, here’s where you can learn to create yours after you listen to Brooke Abbott give hers: www.verywell.com/how-to-create-yo…r-speech-1942452

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About IBD Podcast 14 – We Are All Capable of More Than We Think With Brian Greenberg

What are your goals? Are you taking steps each day to move towards those goals? Brian Greenberg, endurance athlete and president of Chronically Better You, tells us how he moved from goals after surgery—getting out of bed and making his own lunch—to training for an Ironman in 2018. People with IBD know the value of structure and Brian explains how he has learned to manage his life with Crohn’s disease and an ostomy through careful planning and setting goals.
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