What’s a Twitter Chat?
A Twitter chat is a way for Twitter users to gather together at the same time and talk about a particular topic. In this case, we’re moms who have IBD and we want to discuss clinical trials. Our co-host this month is Clara Health, a group focused on making it easier for patients and families to access breakthrough treatments. By searching for, or clicking on, the hashtag, #IBDMoms and #PatientsHavePower you can follow along with all the posts using that tag. In this way, you can see the conversation and also take part.
I talk with Brooke Abbott of The Crazy Creole Mommy Chronicles about what it’s like to be a parent with a chronic illness and how that’s affected our relationship with our children. We also try to figure out how to clone ourselves and I’m so tired that I get the name of a well-known celebrity wrong — several times. Continue reading
Do you ever feel like the on that sticks out? I do, frequently. I’ve done my best to make the most of bad situations, but when it’s my child that is the one who “sticks out,” I don’t always react in the most rational, thought-out way.
A man approached me at an event, not an IBD-related one, and asked me what everyone was doing. The event was a walk at a local beach and it happened to be for food allergy awareness.
“This is a walk to raise funds and awareness of food allergy.”
“That’s strange,” he said to me, and made a face of disbelief.
“Why is that strange?” I said.
“Because you think it would be cancer or Alzheimer’s or something.” Continue reading
On March 9th, the IBD Social Circle held a Twitter chat to discuss pregnancy, birthing, and parenting as an IBD patient. I was the host, and Stephanie Hughes of The Stolen Colon was my co-host. Our featured gastroenterologist was Dr Edward Loftus, Jr of Mayo Clinic. It was a lively chat with lots of great information that I don’t want anyone to miss! Here are some of the best Tweets from the chat!