Tag Archives: progress

What Can’t You Do?

Monsters are real

Recently, during an interview, I was asked to talk about what I couldn’t do because of my IBD or my j-pouch. I may have visibly bristled at the question, though I tried to mask this initial negative reaction. I did think about how to formulate an answer–probably for a good solid minute. In the end, I couldn’t come up with anything.

The interviewer made a few suggestions, but they were things that I don’t dwell on, such as dietary restrictions. Having some dietary restrictions is not something I think about often. I can absolutely still eat all kinds of healthy food as well as not so healthy, yet tasty, food like chocolate, and also have a cocktail. I no longer see food as an obstacle or a problem, because I’ve worked out my diet and I pretty much stick with what I know at this point. Therefore, this is not something I ruminate about or concern myself with too much.

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There Are No Pictures Of Me

Amber as a baby

Aww. I’m a baby. Why am I holding a football? No idea. This would have been mid-70s, as evidenced by the green velour couch. It was a super comfortable couch, let me tell you. Great for building forts, too.

At the risk of sounding aged and out-of-touch, daily life was much different when I was diagnosed and even 10 years later when I had my j-pouch surgeries. No smart phones. No Internet. No digital photos. Most people didn’t have computers. A lot of people didn’t own cameras.

This is why there are no pictures of me. There are no photos of me battling ulcerative colitis in my hospital bed. No photos of my stoma. My wasted, 89 pound body. The skin peeling off the bottom of my feet. The blood transfusion. The voluminous amounts of gelatin I ate when my body could tolerate nothing else. There are no images of these things. We didn’t take pictures of them, and truthfully I can’t even remember if I owned a camera, or if anyone in my family did. Continue reading

Do I Ever Run Out Of Ideas?

MyWriting Routine*

Everyone has their routine, right? So, I don’t do this each and every time I sit down to write, but it’s a pretty fair description of how most days go. I have to clean my desk off and I have to get coffee, but other things are subject to change.

Frank Garufi Jr of The Crohn’s Colitis Effect asked me a question that I actually get asked all the time, so I felt it was worthwhile to answer in writing.

“Don’t you run out of ideas to write about?’

And actually, no, I don’t. Now, that’s not to say there aren’t topics that I drag my feet on writing, or that I don’t have the resources to write at a particular time. But I never actually run out of ideas.

There are times I’m tired of writing. There are times that a particular topic is so personal that I can’t seem to get it out of my brain and into my computer. There are times when I just can’t find enough sources to write about a topic intelligently. But there are never times that I don’t actually have any ideas.

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