Tag Archives: sharing your story

About IBD Podcast 13 – Growing Up IBD with Brian Greenberg

Being diagnosed with IBD as a child presents special challenges for kids and for parents. Learn how Brian Greenberg of Intense Intestines Foundation dealt with a Crohn’s disease diagnosis at a young age and transitioned from being a child reliant on parents to help manage his IBD to learning how to manage it all himself.

 

2:15: Brian spent a lot of time in detention as a kid!
3:15: The hardest part of going to school with IBD.
5:00: Brian’s first resection: at 21.
7:00: Deciding to get an ostomy and what that meant for the future.
9:00: How an ostomy and a Ken butt made life better.
11:00: The misunderstandings that can happen when your peers don’t understand about IBD.
14:00: Why do people not just ask about why a person may appear sick?
16:00: How Brian manages to stay active with Crohn’s disease.
16:30: How being active can help with the mental aspects of coping with IBD.
17:34: Why distractions can actually be beneficial at times.
19:00: One of the things Brian has done that maybe is a little risky. But super fun.
19:40: How Brian managed an aggressive medication schedule in the 90s.
20:20: Brian’s experience in transitioning from parents managing everything IBD to him managing it himself.

Find Brian Greenberg at:
Twitter: twitter.com/BrianG_CBY
twitter.com/ChronicBetterU
Instagram: www.instagram.com/BrianG_CBY/
www.instagram.com/ChronicallyBetterYou/
Facebook: www.facebook.com/ChronicallyBetterYou/

Find Intense Intestines Foundation at:
We Will Beat IBD Podcast: itunes.apple.com/us/podcast/we-wi…d1065350104?mt=2
Web: www.intenseintestines.org/
Facebook: www.facebook.com/IntenseIntestines/
Twitter: twitter.com/NtenseNtestines
Instagram: www.instagram.com/intense_intestines/

Find Amber J Tresca at:
Verywell: www.verywell.com/ibd-crohns-colitis-4014703
Blog: aboutibd.com/
Facebook: www.facebook.com/ibdcrohns/
Twitter: twitter.com/aboutIBD
Pinterest: www.pinterest.com/aboutibd/
Instagram: www.instagram.com/about_IBD/

Intro Music: Badass – Bensound.com – www.bensound.com/royalty-free-music
Outro Music: The Lounge – Bensound.com – www.bensound.com/royalty-free-music

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When Miscarriage Happens To You

Girl On A Beach

When is your family “complete”? It’s hard to know what the answer is to that question and in some cases it’s decided for you instead of by you.

Below includes my experience of miscarriage. Please note this includes a frank discussion of pregnancy loss and medical treatment for such, as well as strong language.

I never thought I’d be writing about miscarriage. To tell the truth, I kind of don’t want to do it now. But I’ve come to realize that holding back is harmful to me, and imparts the feeling that my experiences didn’t serve any purpose. Not that everything that happens has a reason or a purpose, but I have the ability to take this part of my life and turn it into something positive.
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What’s Your Trust Setting?

Cooper: “TARS, what’s your honesty parameter?
TARS: “90%”
Cooper: “90%?”
TARS: “Absolute honesty isn’t always the most diplomatic, nor the safest, form of communication with emotional beings.”

Interstellar

Interstellar has become one of my favorite movies. Don’t let the science fiction part of it get in your way — it’s not about that. It’s about what it means to be human and how to distinguish between saving individuals and saving humanity as a species.

Having a chronic illness is rather like having a secret. How do you go about telling people of your illness? Do you tell them at all?

I saw a posting in a closed IBD group recently where a member was asking for help in how to request accomodations at work without having to get specific about health circumstances. Advice was offered on how to handle the situation discreetly, until another member demanded that the advice seeker should “tell the truth.” “Why would you lie?” the response continued.

Not revealing the whole truth is not the same thing as lying. I was concerned about the helpfulness of this exchange, and I failed to see how it was productive for anyone. I don’t believe any person has the right to question another person’s decision to not disclose a health situation. We don’t owe each other the truth. Continue reading