Tag Archives: support

About IBD Podcast 12 – Don’t Let IBD Ruin Your Day

Did you know that more than 70% of people with IBD have reported bathroom accidents (fecal incontinence)? Did you also know that only around 20% ask for help from their physicians? It’s a sensitive topic, to be sure, which is why I offer advice on how to cope with this problem and how to avoid it in the first place. If you’re struggling with this issue I have tips that you can use today but the best advice is to talk to your doctor about it (and I discuss that also!).

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What It Means To Be #IBDvisible

Puzzle

Is there always a piece of you that’s missing? Maybe a piece of information that you leave out when you meet new people. Do you keep your IBD secret because you might open yourself to problems at school or work?
Image © Pawe³ Windys http://www.freeimages.com/photographer/windys-39131

People sometimes tell me, “Oh, I’ve read your blog.” It’s often said almost sheepishly, as though it were something that were slightly distasteful or embarrassing. It does seem to take a little courage for people to tell me this, which also leads me to believe for every person who tells me this, there are others who are reading and yet never say anything.

For my part, I love it when people tell me they’ve read my writing. Especially when they don’t have IBD themselves or have a close friend or family member with the disease. While I do my best to reach people with IBD so that they have the information they need to make treatment decisions and live better, I also want to reach people who aren’t touched by IBD in order to recruit them as allies. After all, this is the very heart of awareness: people with IBD are already aware. We must reach those who have no reason to become educated about IBD, and offer them the tools to become aware.
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Sam And Frodo And The Importance Of Support

“It would be the death of you to come with me, Sam,” said Frodo, “and I could not have borne that.”
“Not as certain as being left behind,” said Sam.
“But I am going to Mordor.”
“I know that well enough, Mr. Frodo. Of course you are. And I’m coming with you.”
― J.R.R. TolkienThe Fellowship of the Ring

Frodo, Sam, Gollum in Emyn Muil

Frodo, Sam, and Gollum (who was also suffering from being under the spell of The One Ring) in Emyn Muil, on their way to Mount Doom to destroy the ring in the fires there.
© Tomasz Steifer, Gdansk, under the Creative Commons Attribution 2.5 Generic license.

Do you feel supported in your daily life, as you navigate your way through your diagnosis of IBD? Support can come in many forms, and you probably have several sources of support, but I think it’s probably rather rare to feel supported all the time.

In The Lord Of The Rings, Frodo the Hobbit is charged with carrying The One Ring. The One Ring, which looks like a simple gold ring, is infused with evil power, and it poisons Frodo in body, mind, and spirit. Frodo’s friend and companion is Samwise, who travels with Frodo to destroy The One Ring before it can fall into the wrong hands. Frodo becomes increasingly unstable during their journey — obsessed with The Ring and, in the end, unable to even walk. Sam carries him. Continue reading