Tag Archives: podcast

“Boo Can’t Poo!” With Iris Wang, MD – About IBD Podcast Episode 153

Dr. Iris Wang, assistant professor in the division of Gastroenterology and Hepatology and the Associate Program Director of the GI fellowship at Mayo Clinic in Rochester, Minnesota and Amber Tresca discuss the stigma surrounding gut health and poop. Dr. Wang shares the experience of writing a children’s book focused on preventing and managing constipation titled “Boo Can’t Poo!” They also discuss the challenges of publishing a book on gut health and the potential benefits of talking about poop and toileting, emphasizing the importance of open communication and personalized treatment. Listen to learn about where you can get “Boo Can’t Poo!” and how parents with IBD can manage their anxiety around the idea of their kids developing IBD.

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The Harms of Copay Accumulators – About IBD Podcast Episode 151

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Did you notice that suddenly one year you started paying more for your healthcare? Crohn’s disease and ulcerative colitis are sometimes treated with medications that are expensive. Manufacturers create programs to help patients afford these drugs. In the beginning, these payments from assistance programs counted toward a yearly health insurance deductible. Then, suddenly: they stopped counting. Overnight, patients found themselves responsible for more costs, while insurance carriers received what amounts to double payments. A 2023 court ruling says that this practice should be reversed again, but it’s not happening. Amber McCown tells her story of how a copay accumulator program took her by surprise and why she’s partnering with the HIV+Hepatitis Policy Institute and working with legislators and agencies to advocate for change.

Listen and Subscribe to About IBD: Apple Podcasts | Spotify | Overcast | Castbox

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Colorectal Cancer Awareness Month With Dan “Dry Dock” Shockley – About IBD Podcast Episode 149

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Diagnosed with attenuated familial adenomatous polyposis (AFAP), retired Navy veteran Dan “Dry Dock” Shockley shares his remarkable journey of service, diagnosis, and advocacy. Following his diagnosis, Shockley became a passionate advocate for early detection and reducing the stigma associated with living with an ostomy. He emphasizes the importance of proactive medical care and maintaining a positive attitude in the face of adversity. Through his advocacy work and personal journey, Shockley serves as an inspiration, demonstrating resilience, determination, and a commitment to making a difference for others.

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Post-Traumatic Stress Disorder and IBD With Stephanie Brenner, LCSW, MSW

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My guest is Stephanie Brenner of Chronic Illness Psychotherapy. Stephanie is a Licensed Clinical Social Worker who has experience in working with clients with chronic illnesses. She has also taken on a variety of roles in GI space, including previously serving on both the advisory team for the Pediatric Crohn’s Guidebook and the recruitment committee for the Rome Foundation’s GastroPsych organization.

Stephanie lives with Crohn’s disease and a permanent ileostomy and is also a cancer survivor. I asked her to help us better understand PTSD and PTS as they relate to having a chronic illness like IBD. She defines PTSD and why it can happen with IBD, what some of the signs and symptoms might look like, and what patients can do to address their mental health

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IBD in the Hispanic Community With Oriana Damas, MD – About IBD Podcast Episode 144

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As an assistant professor of medicine in the Division of Gastroenterology at the University of Miami Miller School of Medicine, and the Director of Translational Studies for the Crohn’s and Colitis Center, Dr. Oriana Damas sheds light on the misconception that IBD only affects certain ethnicities. Her extensive research explores the connection between of environment and genetics in the development of IBD, with a special focus on its impact on immigrants from Latin America. Dr. Damas shares insights into the challenges of studying the role of diet in IBD, revealing key findings from her research and explaining how her work is reshaping our understanding of these diseases

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Coping With IBD While in Military Service – About IBD Podcast Episode 141

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What do all the new oral drugs available for treating IBD have to do with military service? Being diagnosed with IBD might mean leaving the military for some service members. Part of the reason is that it’s not possible to be deployed while receiving a drug that’s an injection or an infusion. But when a medication works well and happens to be in pill form: that’s a game-changer. Dr Anish Patel, the Medical Director of the Inflammatory Bowel Disease Center at Brooke Army Medical Center gives an update on how IBD is treated in the military, what he sees on the horizon for IBD, and his best advice for every patient living with a chronic illness.

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Learning to Accept IBD – About IBD Podcast Episode 140

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Being diagnosed with a chronic condition is a major adjustment. Digestive conditions like IBD (Crohn’s disease and ulcerative colitis) wind up affecting every part of our lives. Learning to accept the ways in which the disease affects life can be helpful. But it’s important to make the distinction between acceptance and complacency. Maalvika Bhuvansunder, a young adult patient living with Crohn’s disease, uses her experiences to help bring the concept of acceptance into focus for other people who are living with a chronic condition.

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Managing IBD Diet and Lifestyle With Clemmie Oliver – About IBD Podcast Episode 137

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Diet does matter in inflammatory bowel disease (IBD). Not only in how it affects the digestive system, but also in overall health. Adults with IBD have greater incidences of heart disease, lung disease, cancer, diabetes, arthritis, kidney disease, liver disease, and ulcers than do people without IBD. (Xu, 2018.)

For those reasons and more: thinking about diet and how it affects all these other body systems, as well as the IBD, is important.

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Yoga for IBD With Desiree Schmidt – About IBD Podcast Episode 135

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Desiree Schmidt, a 500-hour yoga instructor and owner of a personal training business, shares her passion for helping people with chronic illnesses, which is inspired by her own experience with Crohn’s disease. She discusses how yoga has been key in her journey, both physically and mentally.

Amber and Desiree discuss the benefits of different yoga forms and how to choose the right practice based on whether one is in a flare-up or in remission. Desiree points out how it is important to modify poses when living with a health condition, including IBD, to ensure comfort and safety during classes. She offers insights into providing options for different needs, making the yoga accessible for everyone.

Gain valuable insights into the world of yoga, its benefits for chronic illness, and how to embark on your own yoga practice with confidence and guidance.

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Accommodations for IBD in College – About IBD Podcast Episode 131

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What happens when your professional life and your IBD overlap? Sari Grossman is a research scientist, Crohn’s disease patient, and advocate for patients with chronic illnesses. She shares her experience with Crohn’s disease, including her family history of IBD, diagnosis at a young age, her unusual symptoms, and the impact it had on her life. She speaks candidly about the physical and emotional challenges of living with a chronic illness, and how she has learned to cope with the ups and downs of her condition.

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