Tag Archives: Crohn’s disease

About IBD Podcast Episode 86 - Double Baggin' It With Joe and Danielle

About IBD Podcast Episode 86 – Double Baggin’ It With Joe and Danielle

Did an IBD diagnosis change the direction of your life? For Danielle Golden and Joe Teeters, being diagnosed as a young adult had a profound influence on their lives. The plans they had for their lives were derailed, but they only met, formed a strong friendship, and founded Double Baggin’ It because of their IBD. Learn more about their disease journeys, how they met, and how they use humor to raise awareness of IBD and ostomy life both inside and outside the IBD community.

Continue reading
About IBD Podcast Episode 84 - Find the Pony With Justin Baker

About IBD Podcast Episode 84 – Find the Pony With Justin Baker

For many of us who live with a form of IBD, being a performer seems like it would be impossible. Some of the problems include needing a job that provides health insurance, the stress of auditions, and being healthy enough to perform onstage. Justin Baker, however,  has found a way to make it work for him as he lives with Crohn’s disease and ankylosing spondylitis (a form of degenerative arthritis that’s associated with IBD). Justin is an actor, a photographer, and a clown. He tells me how he manages stress, how empathy informs his work and his life, and how not having health insurance led to emergency surgery for his Crohn’s disease.

Continue reading
About IBD Podcast Episode 80 - Am I Forgiven_

About IBD Podcast Episode 80 – Am I Forgiven?

Do you worry that inflammatory bowel disease (IBD) will get in the way of finding a romantic partner? Crohn’s disease or ulcerative colitis can make dating challenging but they can also simplify it. It becomes clear pretty quickly if a potential partner is going to struggle to cope with chronic illness. This episode focuses on communication, as Amber and her husband, Mike, discuss how he reacted to his first introduction to ulcerative colitis and why it’s important to check in with your partner before discussing IBD outside of the relationship. After more than 20 years, they finally put an incident of miscommunication to bed, and Mike gives his tips on being a supportive partner.

Continue reading
About IBD Podcast Episode 79 - The Girl That Was Missing

About IBD Podcast Episode 79 – The Girl That Was Missing

Inflammatory bowel disease (IBD) affects more than the digestive system. Crohn’s disease or ulcerative colitis can also affect the eyes, joints, and skin. Jordan Ditty was diagnosed with IBD as a child, though her diagnosis floated between Crohn’s and ulcerative colitis and she had j-pouch surgery due to a colonic perforation. Recently, she had her j-pouch removed and a permanent ileostomy placed. Surgery gave her with a better quality of life but also a new diagnosis of a skin condition related to IBD, called pyoderma gangrenosum. Learn how Jordan remains hopeful through her long journey with IBD and a host of complications.

Continue reading
About IBD - Podcasts to Listen to This Ostomy Awareness Day

Podcasts to Listen to This Ostomy Awareness Day

Ostomy Awareness Day is an important observation that helps eliminate the stigma surrounding ostomies and ostomates. Ostomy surgery is lifesaving and many people who have an ileostomy or colostomy surgery due to ulcerative colitis or Crohn’s disease experience improved quality of life.

Continue reading
About IBD Episode 68 - What It's Like to Have IBD and COVID-19

About IBD Episode 68 – What It’s Like to Have IBD and COVID-19

People living with IBD who have suppressed immune systems because of medication are understandably concerned about their risks surrounding the novel coronavirus and COVID-19. Jamie Horrigan, a medical student and founder of “Sweetened By Nature,” lives with Crohn’s disease and gastroparesis and was diagnosed with COVID-19. She describes her experiences with symptoms, diagnosis, isolation, and recovery. She also gives some insight on why a common complication of coronaviruses, called a cytokine storm, may be an important factor of COVID-19 for people with IBD.

Continue reading
COVID-19 Resources For People Living With IBD

Coronavirus (COVID-19) Resources For People With IBD

People with inflammatory bowel disease (IBD, Crohn’s disease, ulcerative colitis, or indeterminate colitis) are understandably concerned about the novel coronavirus, and the disease it causes, COVID-19, spreading in their community. People who have certain medical conditions and/or are receiving immunosuppressive medications may be at a greater risk of complications for COVID-19. There are some guidelines put out specifically for people with IBD that can help in making decisions during this time. On this page you will find trusted and verifiable resources that help you as you make choices regarding travel, medications, and everyday life during the pandemic.

Continue reading
AMBER: I’m Amber Tresca and this is About IBD. It’s my mission to educate people living with Crohn’s disease or ulcerative colitis about their disease and to bring awareness to the patient journey. My guest on this episode is Dr Selvi Vasudevan (VAHsooDAYven). Dr Selvi was diagnosed with Crohn’s disease in college and endured several surgeries and complicated recovery periods but she didn’t let it stop her from going to medical school. She was in the middle of a pediatric residency when the disease changed the course of her life again. She looked for more meaning and purpose in her journey and she found it by first finding her own way to healing and then by sharing what she’s learned with others. I caught up with Dr Selvi at Crohn’s and Colitis Congress in Austin, which is a medical meeting for healthcare professionals. We sat down for a chat in the press room. during our lunch break so you’ll notice that

About IBD Podcast Episode 64 – My Life Would Never Be the Same

Finding meaning in an illness journey can be a catalyst for purpose and hope. Dr Selvi Vasudevan endured severe Crohn’s disease that resulted in several surgeries and a relentless series of complications. She was on her chosen path when the disease stole her aspirations and left her without direction. A recommitment to herself and her own healing journey helped her find her purpose again as a healer and prompted her to found Cooking With Crohn’s in order to share what she’s learned with the IBD community.

Continue reading
Talking to Your Doctor About Sleep

Talking to Your Doctor About Sleep

Most people may not immediately make a connection between inflammatory bowel disease (IBD) and sleep, but the two are intertwined. IBD affects the entire body and that includes the ability to achieve restful sleep. Living with Crohn’s disease or ulcerative colitis can significantly affect the quality and quantity of a person’s sleep, even when the disease is well-controlled. 

Quality, restorative sleep is important to long-term health. However, most people don’t get enough. In fact, the Centers for Disease Control and Prevention (CDC) consider the low quality and lack of restorative sleep among adults in the United States to be a public health epidemic. This makes sense when you think about it, because fatigue affects every aspect of a person’s life. A lack of sleep is associated with many common chronic conditions, including diabetes, high blood pressure, and depression.

Continue reading
About IBD Episode 63 - Accommodations, Health Insurance, and IBD at Work

About IBD Podcast Episode 63 – Accommodations, Health Insurance, and IBD at Work

People who live with Crohn’s disease or ulcerative colitis have more to consider when it comes to the workplace. The cost of inflammatory bowel disease (IBD) means that a comprehensive insurance plan is a must, which may limit job choices. A flare-up or complication that results in absences can lead to poor performance reviews or difficulties with supervisors or co-workers. How can people with IBD cope? Three women who live with IBD, Megan Starshak, Mary Elizabeth Ulliman, and Tina Aswani Omprakash, tell their stories about missing work, being underinsured, and changing jobs while managing IBD.

Continue reading