Tag Archives: crohns

Healthcare Disparities in IBD

New Podcast: Healthcare Disparities in IBD

Healthcare Disparities in IBD: How Race, Ethnicity, and Sexual Orientation Affect Access to Care in Inflammatory Bowel Disease

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About IBD
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New Podcast Brings Attention to the Disparities Experienced by People of Diverse Backgrounds Who Live With Inflammatory Bowel Disease

Patients, healthcare providers bring attention to the rising incidence of Crohn’s disease, ulcerative colitis, across racial and ethnic groups

CONNECTICUT, Apr 5, 2021 — Inflammatory bowel disease (IBD, which includes Crohn’s disease, ulcerative colitis, and indeterminate colitis) affects people of all ethnic backgrounds.1 However, people from minority groups experience a disparity of care that can result in worse outcomes, including complications, lowered quality of life, and increased mortality.2

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About IBD Podcast Episode 91 Cover

About IBD Podcast Episode 91 – Derek Mari of Crohnie: It’s Not Impossible

Have you ever seen a person who lives with inflammatory bowel disease (IBD) in a movie or TV show? If so: was the depiction positive or negative?

My guest is actor, writer, and filmmaker Derek Mari. Derek lives with Crohn’s disease and his IBD journey  inspired him to create a story that explores the way people cope with living with a chronic illness. He has already filmed a short film, entitled “Crohnie,” which was positively received at several film festivals (before the pandemic shut everything down).

Derek’s next project is a full-length feature film with a main character who lives with Crohn’s disease. Loosely autobiographical, it will examine the journey to acceptance of life with a chronic illness, and show how that life can be full and filled with success.  Learn more about Derek and his Crohn’s story, as well as how you can get involved in the crowdfunding program to get this film made.

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About IBD Podcast Episode 85 - Dr David Rubin Answers COVID-19 Vaccine Questions

About IBD Podcast Episode 85 – Dr David Rubin Answers COVID-19 Vaccine Questions

From the beginning of the COVID-19 pandemic, people with inflammatory bowel disease (IBD) have had many questions. Now that vaccines against the virus are becoming available, people living with Crohn’s disease or ulcerative colitis need even more information in order to make decisions. I asked Dr David Rubin, Chief of the Section of Gastroenterology, Hepatology & Nutrition and the Co-Director of the Digestive Diseases Center at The University of Chicago Medicine to answer some of these initial questions about the first COVID-19 vaccines (manufactured by Pfizer and Moderna). Topics discussed on this episode include:

  • How vaccines work
  • How mRNA works
  • How IBD medications affect the immune system
  • IBD medications and their potential effect on COVID-19 vaccination
  • When we’ll have more information about COVID-19 vaccines and IBD
  • Why side effects with vaccines are expected and what they mean
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About IBD Podcast Episode 77 - Back to School In the Pandemic With Dr Brad Jerson

About IBD Podcast Episode 77 – Back to School in a Pandemic With Dr Brad Jerson

Back to school will be quite different for families across the United States and the world this year. There aren’t many answers to be had to our questions, yet we must make decisions with the best information that we have at this time. I speak with Dr Brad Jerson, a Pediatric Psychologist in the Division of Digestive Diseases, Hepatology, and Nutrition at Connecticut Children’s and an Assistant Professor of Pediatrics at the University of Connecticut School of Medicine about how we can prepare our kids, and ourselves, for the school year. We discuss the behaviors we can model for our children, how we can talk to young kids about mask wearing, and how to engage kids of all ages in conversation about their fears and anxieties during this time. 


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About IBD - Why You Should Keep That Dentist Appointment

Why You Should Keep That Dentist Appointment

Taking care of one’s teeth is important to anyone, but it is especially vital for people who live with an inflammatory bowel disease (IBD). We often say that Crohn’s disease, ulcerative colitis, and indeterminate colitis affect the whole person. The mouth is included in this, but we often short change ourselves where oral care is concerned. Mouth ulcers can be common in people with IBD. Cavities and infections of the gum and teeth may be more common in people with IBD. True Crohn’s disease of the mouth is less common, though it does occur. This all means that while most of us have lots of doctor’s appointments already, seeing a dentist is one that we need to keep on our list as well.

All of this is why, when my dentist office opened up, even while cases of COVID-19 were high in my area, I kept my appointment to get my teeth cleaned. A few weeks later, when the pediatric dentist opened up, I took my kids for their appointments. Here’s why I went and what to expect when visiting the dentist in the era of corona.

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Reporting from Advances in IBD 2019: Current Opinions on Diet and IBD

Reporting from Advances in IBD 2019: Current Opinions on Diet and IBD

People who live with inflammatory bowel disease (IBD) often have questions about what should and shouldn’t be included in a diet plan. There’s not one single diet for every person with IBD, which presents challenges for patients. Diet is difficult to study because there are so many variables. While more data and research on diet is clearly needed, there are some general guidelines that health care professionals can offer their patients. 

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Reporting from Advances in IBD 2019: Parenthood Project Consensus Statement

Reporting from Advances in IBD 2019: Parenthood Project Consensus Statement

One of the presentations I attended at Advances in Inflammatory Bowel Diseases (AIBD) in Orlando, Florida in December 2019 was regarding the IBD Parenthood Project. The American Gastroenterological Association (AGA) has put together a clinical care pathway for pregnant women who live with IBD. The pathway was created with input from representatives from different specialties that may care for pregnant women with IBD, including gastroenterologists, maternal-fetal medicine specialists, teratologists, lactation specialists, and patients.

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About IBD Podcast Episode 60 – Managing IBD Is a Team Sport With Dr. Aline Charabaty

This episode is sponsored by AbbVie.

How do you think about your connection with your gastroenterologist? The patient/physician relationship is important in managing inflammatory bowel disease. I talk with Dr. Aline Charabaty, Associate Professor of Medicine, Director of the IBD Center at Johns Hopkins Sibley Memorial Hospital, and winner of the 2019 Healio Gastroenterology Social Media Influencer Award, about how patients and doctors can better understand one another and better communicate about managing your disease. Find out how doctors can help patients in addition to finding the appropriate treatment for them, including what kinds of questions both groups should be asking, and how we can all move beyond “how many bowel movements” to discuss other issues important in Crohn’s disease and ulcerative colitis.

Want to get ahead of preparations for your next appointment? Try out the Doctor Discussion Guide at crohnsandcolitis.com/podcast.

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Providing the Best Start for Baby With MotherToBaby

About IBD Podcast Episode 59 – Providing the Best Start for Baby With MotherToBaby

Crohn’s disease and ulcerative colitis are diseases of young people. Women are often diagnosed during their childbearing years, which means that inflammatory bowel disease (IBD) enters into the equation when considering becoming pregnant. I talk with Beth Kiernan, a Teratogen Information Specialist at MotherToBaby about how women can learn more about how to manage IBD medications before conception, during pregnancy, and while breastfeeding.

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How I’m Learning to Be SMARTer About Managing My Health

How I’m Learning to Be SMARTer About Managing My Health

I’ve never before considered contacting a health coach. I’m fortunate to have a robust support network and as an experienced patient, it seemed to me that perhaps a health coach wouldn’t have much to offer me. My mind was changed, however, when I got in contact with Pack Health.

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