About IBD Podcast Episode 76 - The Footprints Program With Arielle Radin

About IBD Podcast Episode 76 – The Footprints Program with Arielle Radin of Gali Health

What’s in your microbiome and how does it interact with your IBD? The bacteria that’s in the gut of someone that lives with IBD is different from the bacteria in the the gut of someone that doesn’t have IBD. This is a major area of study because it may help researchers not only in developing new treatments but also in better understanding IBD. That’s why I asked Arielle Radin, Director of Clinical Research for Gali Health, to talk to me about the Footprints Program.

The Footprints Program is an ambitious research project that is going to sequence poop and saliva from IBD patients. It’s being used in conjunction with the Gali Health app, which is made especially for IBD patients to track their symptoms and connect with other people who live with Crohn’s disease or ulcerative colitis. Participants in the Footprints Program will get access to some information about their microbiome. They can then look at the changes over time and see if there are any trends with the symptoms that are kept in the Gali app. It sounds pretty amazing, which is why I signed up for the program. Arielle Radin, who answers my questions about Gali Health and the Footprints Program, and on a personal note, tells us about getting married during the pandemic.

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About IBD Podcast Episode 75 - The Sherman Prize With Dr Dermot McGovern

About IBD Podcast Episode 75 – The Sherman Prize With Dr Dermot McGovern

The Sherman Prize is an award created by Bruce and Cynthia Sherman to recognize those who are making great contributions to the field of research and care in inflammatory bowel disease (IBD). The Sherman family has been touched by IBD and their goal is to create a ripple effect that spreads awareness, fosters innovation, and provides inspiration in the hope that in the future, other families won’t have to contend with IBD in the way that theirs has. Dr Dermot McGovern, Professor of Medicine at the David Geffen School of Medicine at the University of California in Los Angeles and the 2020 Committee Chair for the Sherman Prize talks more about the value of the Prize to the IBD community, who can make a nomination, and how to nominate a great candidate. He also talks about his research on the genetics of IBD and why it might help in leading to new treatments.

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About IBD Podcast Episode 74 – Find Those Things That Make You Happy

Being diagnosed with inflammatory bowel disease (Crohn’s disease or ulcerative colitis) can upend your entire life. Then being diagnosed with a rare liver disease on top of that? It could truly break you down and leave you feeling hopeless. But that’s not what happened to Jenna Ziegler of The Comical Colon. Not long after her ulcerative colitis diagnosis, her doctor was concerned about her liver test levels. With more testing and a lot of patient empowerment, Jenna now has a presumed diagnosis of primary sclerosing cholangitis, or PSC. She tells how she has fought to get the tests she needed to understand her level of risk, and the treatment that can help prevent PSC from progressing and causing more damage to her liver.

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About IBD Podcast Episode 73 - You've Got to Find the Humor in Things

About IBD Podcast Episode 73 – You’ve Got to Find the Humor in Things

Do you have a sense of humor about your IBD? Jenna Ziegler of The Comical Colon found that keeping her sense of humor has helped her through the challenges she faced after being diagnosed with ulcerative colitis in college. After fighting her way back to health after severe flare-ups and carving out the life she wanted for herself, Jenna received another stunning diagnosis: a rare liver condition called primary sclerosing cholangitis, or PSC. Over the years she has done the hard work to learn how to be an empowered patient and she shares her 5 tips on how you can learn to advocate for yourself.

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About IBD - Why You Should Keep That Dentist Appointment

Why You Should Keep That Dentist Appointment

Taking care of one’s teeth is important to anyone, but it is especially vital for people who live with an inflammatory bowel disease (IBD). We often say that Crohn’s disease, ulcerative colitis, and indeterminate colitis affect the whole person. The mouth is included in this, but we often short change ourselves where oral care is concerned. Mouth ulcers can be common in people with IBD. Cavities and infections of the gum and teeth may be more common in people with IBD. True Crohn’s disease of the mouth is less common, though it does occur. This all means that while most of us have lots of doctor’s appointments already, seeing a dentist is one that we need to keep on our list as well.

All of this is why, when my dentist office opened up, even while cases of COVID-19 were high in my area, I kept my appointment to get my teeth cleaned. A few weeks later, when the pediatric dentist opened up, I took my kids for their appointments. Here’s why I went and what to expect when visiting the dentist in the era of corona.

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About IBD Podcast Episode 72 - I Had Contemplated Keeping It a Secret

About IBD Podcast Episode 72 – I Had Contemplated Keeping It a Secret

What has been your experience with ostomy surgery? If you know someone who lives with an ileostomy or a colostomy, you’ll likely get your impression about having a stoma from them. But what if that person struggles to accept their stoma? When Amber Wallace Ogle of The Ostomy Diaries was faced with ileostomy surgery to treat her Crohn’s disease, she was reminded of the negative experiences of her family members who lived with an ostomy. However, it didn’t take long after her surgery before she was embracing life again and working to show others that life with an ostomy can be fulfilling and beautiful. Amber tells her Crohn’s disease story, gives 5 tips for advocating online, and shares a message she received from a family that has been touched by her advocacy.

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In a Pandemic, Every Decision Is Complicated

In a Pandemic, Every Decision Is Complicated

As of this writing, for the past two months, I have not been to a pharmacy or a grocery store. I have used a delivery service. I, like many other people who live with inflammatory bowel disease (IBD), am immunocompromised because of the medication I receive. I am now reliant on other people to obtain the things we need for our household, but it’s unclear to me if this is the right decision.

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About IBD Podcast Episode 71 - I Evaluated What Was Really Important to Me

About IBD Podcast Episode 71- I Evaluated What Was Really Important to Me

How does being diagnosed with a chronic illness affect your path in life? For Mariah Leach, a rheumatoid arthritis diagnosis came out of the blue and put her at a crossroads. She decided to take the road towards patient advocacy. What started as a way to process her feelings and keep family and friends updated about her condition through her writing has evolved into a calling. Today, she has become a tireless advocate for people living with rheumatoid arthritis and as a resource for parents with chronic illness. It’s Mariah’s goal to ensure no one feels alone in their parenting journey. To that end, she has developed Mamas Facing Forward to support parents and foster the connections she was missing in her first years as a mom.

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IBD Treatments and COVID-19: What the Experts Say

COVID-19 and IBD: Notes From an AGA Briefing

I attended a briefing given by the American Gastroenterological Association (AGA) which was focused on COVID-19 and how the disease may affect people who live with inflammatory bowel disease (IBD). The briefing was given by three specialists: AGA Patient Education Advisor, Rajeev Jain, MD, AGAF, of Texas Digestive Disease Consultants; David T. Rubin, MD, AGAF, Joseph B. Kirsner Professor of Medicine, Chief, Section of Gastroenterology, Hepatology and Nutrition, University of Chicago Medicine, Illinois; and Russell D. Cohen, MD, AGAF, Professor of Medicine, Director, Inflammatory Bowel Disease Center, University of Chicago Medicine, Illinois. Drs Jain, Rubin, and Cohen are all integral in the IBD community and generously lend their time and expertise to helping both healthcare professionals and patients better understand IBD. What follows are highlights from this presentation that illustrate what has been learned so far about the intersection of IBD and COVID-19.

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About IBD Podcast Episode 70 - I'm Not Doing This By Myself

About IBD Episode 70 – I’m Not Doing This By Myself

How would you answer these questions about your inflammatory bowel disease (IBD)?  

  • What is the best part of having IBD?
  • What is the hardest part of your day?
  • What is your least favorite treatment?
  • If you could choose one dance for your doctor, what would it be and why?
  • What is one thing you wish people knew about your condition?

Amber answers these questions, posed by Shawntel Bethea of Crohn’s and Stuff, for fun and also to get the conversation started about how Crohn’s disease and ulcerative colitis affect our lives.

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