How does IBD impact the family? Couples who are thinking about having children when one or both of them have IBD often have questions about how the disease will affect their family. Amber interviews her 8-year-old daughter and 10-year-old son about how IBD does — and doesn’t — affect their lives.
Are you ready to tell your story? Your legislators in Washington D.C., in your state, and your home town want to hear from you about how IBD has affected your life and the legislation you care about. Brooke Abbott of The Crazy Creole Mommy Chronicles and Amber tell you how to get started in health activism and how to make your voice heard in our government!
It’s estimated that half of people who have an inflammatory bowel disease (IBD) try complementary and alternative medicine to treat their disease. Eric Polsinelli of Vegan Ostomy describes how he tried dozens of complementary therapies for his Crohn’s disease but never found anything that worked. He did, however, come away with vital insight about how people living with IBD can assess alternative therapies and talk to their physicians about working them into a comprehensive treatment plan. Continue reading
The healthcare space isn’t a level playing field. Minority populations face complex challenges when it comes to accessing and receiving care, which is why April is designated as National Minority Health Month. In regards to inflammatory bowel disease, it’s not well known that Crohn’s disease and ulcerative colitis also affect minorities. Shawntel Bethea of Chronically Strong and Brooke Abbott of The Crazy Creole Mommy Chronicles discuss how they’ve been affected by healthcare disparity and offer concrete ideas on what can be done to start addressing healthcare gaps in their communities.
Take a journey back to 1999, when cellphones were a rarity, dial-up internet access was still in use, and Amber had her first surgery of the 2-step j-pouch process. Amber’s husband Mike, a writer and communicator, journaled his thoughts on the day of the surgery. This journal was recently uncovered and Amber reads it to Mike and gets his reactions and further recollections of that challenging day.
Megan Johnson of The Front Butt YouTuber has presented 5 questions for people with IBD to answer and then tag someone else using #IBDAdvocacyTag. It’s a great way to get to know people in the community better and hear different perspectives. My answer to the form of IBD I have is not going to be what you expect and my socially awkward moment is pretty epic: I remember every detail about it, even though it happened almost two decades ago. And who did I tag? Well, I do that in my own way, too.
Getting married is a joyful time in one’s life. Until you have to bring your IBD along when you shop for your wedding dress, that is. Learn how Crohn’s disease affected Jaime’s perceptions about body image throughout her life and how it all culminated in a trip to a bridal shop that left her angry and frustrated. Plus, we share our best tips for making the dress shopping, and eventual wedding day dress wearing, go more smoothly if IBD decides to make make an appearance.Continue reading
Welcome to the year-end wrap up show! I put together clips from my first 14 shows that drop the heaviest knowledge bombs about how life with IBD affects us, our careers, our relationships, and our stress levels.
Do you have an IBD Elevator Speech? I got you, here’s where you can learn to create yours after you listen to Brooke Abbott give hers: www.verywell.com/how-to-create-yo…r-speech-1942452
What are your goals? Are you taking steps each day to move towards those goals? Brian Greenberg, endurance athlete and president of Chronically Better You, tells us how he moved from goals after surgery—getting out of bed and making his own lunch—to training for an Ironman in 2018. People with IBD know the value of structure and Brian explains how he has learned to manage his life with Crohn’s disease and an ostomy through careful planning and setting goals.
Being diagnosed with IBD as a child presents special challenges for kids and for parents. Learn how Brian Greenberg of Intense Intestines Foundation dealt with a Crohn’s disease diagnosis at a young age and transitioned from being a child reliant on parents to help manage his IBD to learning how to manage it all himself.