Category Archives: Podcast

About IBD Podcast Episode 106 - Every Kid We Take Care of, We Become Part of Their Family

About IBD Podcast Episode 106 – Every Kid We Take Care of, We Become Part of Their Family

How is IBD different in kids than it is in adults? When should kids be transitioned from pediatric to adult care? What’s next for IBD treatments? My guest is Dr Jeffrey Hyams, the head of the Division of Digestive Diseases, Hepatology and Nutrition at Connecticut Children’s, and a Professor of Pediatrics at the University of Connecticut School of Medicine. He provides a historical perspective on the treatment of IBD and is able to highlight how therapies have advanced over the last 30 years. He also gives some ideas about what’s on the horizon for IBD treatments and what gives him hope for the future.

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About IBD Podcast Episode 105 - What Remission Means to a Teen With Ulcerative Colitis

About IBD Podcast Episode 105 – What Remission Means to a Teen With Ulcerative Colitis

Inflammatory bowel disease (IBD, Crohn’s disease, ulcerative colitis, and indeterminate colitis) is being diagnosed in young people with greater frequency. Research on how to treat pediatric patients, and indeed how to prevent IBD in the first place, is still lacking. What’s not in short supply is the strength and resilience shown by pediatric IBD patients and their families. Meet Brooke, a pediatric patient at Connecticut Children’s Hospital who credits her dedicated IBD team with her ability to live a life filled with summer camp, dance, and tennis lessons, without the symptoms of ulcerative colitis. 

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About IBD Podcast Episode 104 - Lt Col Joshua Nelson

About IBD Podcast Episode 104 – Living With Ulcerative Colitis as an Air Force Pilot With Lt Col Joshua Nelson

Did you know that being diagnosed with ulcerative colitis or Crohn’s disease is a disqualifying condition to serve in the United States military? However, it seems that it’s not always an automatic reason for discharge. Lt Colonel Joshua Nelson was diagnosed with ulcerative colitis and needed to have ileostomy surgery. It cast into question his future as a pilot in the Air Force Reserve. Learn his story of how he worked with his medical team in order to keep doing the job he loves, his advice for others like him, and tips on flying that any ostomate can use.

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About IBD Podcast Episode 103 Cover

About IBD Podcast Episode 103 – J-Pouch Surgery for Ulcerative Colitis With Vikram B. Reddy, MD, PhD

Ulcerative colitis surgery is sometimes viewed as the last stop for treatment but it can be a good option to treat inflammatory bowel disease (IBD). Dr. Vikram Reddy, Division Chief of Yale Medicine, Colon and Rectal Surgery, answers questions about j-pouch surgery including how patients feel about it, how he manages his patients after surgery, what complications might occur, and why surgery for ulcerative colitis is complicated and nuanced.

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About IBD Podcast Episode 102 Cover

About IBD Podcast Episode 102 – Finding Success with Nutrition Therapy – Dannielle Jascot, MS, CNS, CDN

IBD is not a condition that is easy to diagnose or treat. People who live with Crohn’s disease or ulcerative colitis have needs that include guidance on nutrition. Diet is notoriously difficult to study but some research is starting to be done. Dannielle Jascot, MS, CNS, CDN, certified nutritionist and IBD patient talks over the recent results of the DINE-CD study, which compared the Specific Carbohydrate Diet and the Mediterranean Diet.

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About IBD Podcast Episode 101 - Barbara Olendzki, RD, MPH, LDN - Every Mom Matters: The MELODY Trial

About IBD Podcast Episode 101 – Barbara Olendzki, RD, MPH, LDN – Every Mom Matters: The MELODY Trial

What should people who live with inflammatory bowel disease (IBD) eat? What diet plans are available? Barbara Olendzki, the Director of the Center for Applied Nutrition and an Associate Professor at the University of Massachusetts Chan Medical School, helped developed the inflammatory bowel disease anti-inflammatory diet (IBD-AID). The IBD-AID is currently being studied in pregnant people in the MELODY Trial. Barbara gives the lowdown on the IBD-AID, the MELODY Trial, and how and why she got started in the nutrition field.

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About IBD Podcast Episode 100 - The Snuggles Are the Thing

About IBD Podcast Episode 100 – The Snuggles Are the Thing

How do your pets help you with your IBD? I speak to Meredith Mangold, “The Bowel Battling Badass,” about the role her dogs have played in her life. She became seriously ill with ulcerative colitis, which progressed into a rare complication called toxic megacolon. As her journey with IBD progressed, she eventually needed colectomy surgery, and has since been diagnosed with other immune-mediated conditions. Her two dogs, however, have become a big part of her advocacy work and they help her manage the pain and loneliness that come with chronic illness.

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About IBD Podcast Episode 98

About IBD Podcast Episode 98 – A Wee Spark of Inspiration

This is the second part of my conversation with Kathleen Nicholls, author of “Go Your Crohn Way: A Gutsy Guide to Living with Crohn’s Disease” and “My Flare Lady: A Handbook for Today’s (Diseased) Dame.” Hear the first part in Episode 97, where Kathleen tells us about her Crohn’s disease diagnosis and how blogging became the way she process her disease journey.

We talk about how to answer when people ask us how we’re doing. Which leads to another topic, and that’s how providers can ask patients about whether or not they want to pursue parenthood. Kathleen also gives blogging tips, including a hard truth, and offers advice to anyone who is newly diagnosed. However, I think her wisdom is important for long-term patients as well.

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About IBD Podcast Episode 97 Cover

About IBD Podcast Episode 97 – Wine, Biscuits, and Drinking Water With Author Kathleen Nicholls

Life with inflammatory bowel disease (IBD) brings challenges and many life changes but it can also sometimes bring unexpected opportunities.

Kathleen Nicholls, author of “Go Your Crohn Way: A Gutsy Guide to Living with Crohn’s Disease” and “My Flare Lady: a handbook for today’s (diseased) dame” was diagnosed with Crohn’s disease in her 20s. She started a blog as a way to process her disease journey. She was stunned when people started reading it and when publishers became interested. Two books later, she shares the lessons she learned along the way.

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About IBD Podcast Episode 96 Cover

About IBD Podcast Episode 96 – Fatherhood and IBD With Jordan McConnell of Crohn’s Veteran

The patient advocacy space is lacking the voices of men and especially men of color. The result is that the IBD community is not diverse enough to provide the kind of support that they need.

Jordan McConnell, the founder of Crohn’s Veteran, is looking to change the dynamics of the online IBD space. Jordan served in the military and was eventually discharged due to his Crohn’s disease. It was a shock and changed his career plans unexpectedly. His disease journey showed him that he needed to be the change and he developed his podcast and his brand to support men and the larger IBD community.

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