Men face particular challenges when it comes to their health. Looking at health statistics in the United States, men are less likely to have health insurance than women. They’re also more likely to have high blood pressure, smoke, and drink alcohol. Men also see a doctor less often than women. There are a variety of reasons for these disparities but the end result is that men might face more health problems.
In the inflammatory bowel disease (IBD) advocacy community, we see more women sharing their story than we do men. In some cases, it’s women who are advocating on behalf of a man in their life. There are many reasons for this too, which of course are individual and personal. What happens, though, is that men might have a more difficult time in finding others in the IBD community that share their concerns.
About IBD Podcast is also a pretty fair representation of the IBD community in that most guests who are patients have been women. However, there have been several men who have also shared their voices and their stories. Below you’ll find episodes featuring men who come from different backgrounds and with a variety of experiences with their Crohn’s disease or ulcerative colitis.
Jordan McConnell, the founder of Crohn’s Veteran, is looking to change the dynamics of the online IBD space. His disease journey showed him that he needed to be the change and he developed his podcast and his brand to support men and the larger IBD community.
Actor, writer, and filmmaker Derek Mari lives with Crohn’s disease and his IBD journey inspired him to create a story that explores the way people cope with living with a chronic illness.
As a young man, Aaron Blocker was diagnosed with Crohn’s disease after years of coping with strange and seemingly disconnected signs and symptoms. However, after one of those hip replacements became dislocated, Aaron went looking for more answers and wound up suspecting that he also had an ultra-rare condition called hypophosphatasia.
For Danielle Gulden and Joe Teeters, being diagnosed as a young adult had a profound influence on their lives. The plans they had for their lives were derailed, but they only met, formed a strong friendship, and founded Double Baggin’ It because of their IBD.
Working as an actor and having IBD don’t sound like they’d be compatible. But there are good reasons why people who have serious health conditions make great performers, as Justin explains.
Gaming4Guts is a gaming marathon to raise funds for the Crohn’s & Colitis Foundation. Participants stream over Twitch during the 72-hour event but they have also formed a community, keeping in contact year-round on the Gaming4Guts Discord server.
For Austin Powers, who goes by The Ostomy Guy, he exhausted all his possibilities to treat complications from Crohn’s disease before having surgery to place an ostomy. Today, Austin runs a podcast and has written a book about his experiences, The Ostomy Guy Story: Memoirs of a Bagman, which is available on Amazon.
How is it possible to not think about your ostomy while participating in endurance races? Find out how Ryan Stevens worked his way back from crushing IBD flare-ups and multiple surgeries, including one to have a permanent ileostomy, in order to train for the ultimate triathlon: the IRONMAN.
A diagnosis of Crohn’s disease and an ileostomy hasn’t stopped Ryan Stevens from competing in triathlon races. Come with us as we relive the IRONMAN Triathlon in Madison, Wisconsin and discuss how Ryan prepared and competed while living with IBD and a permanent ostomy.
Hear Rasheed Clarke discuss how j-pouch surgery affected running, male voices in IBD community, and what he did with a toilet for World IBD Day.
Rasheed tells his experience of the positives, the negatives, and the responsibilities that come with being an influencer in the IBD space.
Eric Polsinelli of Vegan Ostomy describes how he tried dozens of complementary therapies for his Crohn’s disease but never found anything that worked. He did, however, come away with vital insight about how people living with IBD can assess alternative therapies and talk to their physicians about working them into a comprehensive treatment plan.
Brian Greenberg, endurance athlete and president of Chronically Better You, tells us how he moved from goals after surgery—getting out of bed and making his own lunch—to training for an Ironman in 2018.
Being diagnosed with IBD as a child presents special challenges for kids and for parents. Learn how Brian Greenberg of Intense Intestines Foundation dealt with a Crohn’s disease diagnosis at a young age and transitioned from being a child reliant on parents to help manage his IBD to learning how to manage it all himself.
What’s it like to be a competitive swimmer and one day develop Crohn’s disease? Well, you don’t stop swimming! Hear Ryan Stevens, Crohn’s Guy, talk about the work he’s doing to raise awareness of IBD.
- Centers for Disease Control and Prevention. Men’s Health. April 4, 2021. Available at: https://www.cdc.gov/nchs/fastats/mens-health.htm
- Centers for Disease Control and Prevention. Women’s Health. April 4, 2021. Available at: https://www.cdc.gov/nchs/fastats/womens-health.htm
- Centers for Disease Control and Prevention. Table 30. Health care visits to doctor offices, emergency departments, and home visits within the past 12 months, by selected characteristics: United States, selected years 1997–2018. Available at: https://www.cdc.gov/nchs/data/hus/2019/030-508.pdf