Tag Archives: ileostomy

About IBD Podcast Episode 104 - Lt Col Joshua Nelson

About IBD Podcast Episode 104 – Living With Ulcerative Colitis as an Air Force Pilot With Lt Col Joshua Nelson

Did you know that being diagnosed with ulcerative colitis or Crohn’s disease is a disqualifying condition to serve in the United States military? However, it seems that it’s not always an automatic reason for discharge. Lt Colonel Joshua Nelson was diagnosed with ulcerative colitis and needed to have ileostomy surgery. It cast into question his future as a pilot in the Air Force Reserve. Learn his story of how he worked with his medical team in order to keep doing the job he loves, his advice for others like him, and tips on flying that any ostomate can use.

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About IBD Podcasts Featuring Men's Voices

Men’s Health on About IBD Podcast

Men face particular challenges when it comes to their health. Looking at health statistics in the United States, men are less likely to have health insurance than women. They’re also more likely to have high blood pressure, smoke, and drink alcohol. Men also see a doctor less often than women. There are a variety of reasons for these disparities but the end result is that men might face more health problems.

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About IBD Podcast Episode 86 - Double Baggin' It With Joe and Danielle

About IBD Podcast Episode 86 – Double Baggin’ It With Joe and Danielle

Did an IBD diagnosis change the direction of your life? For Danielle Golden and Joe Teeters, being diagnosed as a young adult had a profound influence on their lives. The plans they had for their lives were derailed, but they only met, formed a strong friendship, and founded Double Baggin’ It because of their IBD. Learn more about their disease journeys, how they met, and how they use humor to raise awareness of IBD and ostomy life both inside and outside the IBD community.

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About IBD Podcast Episode 79 - The Girl That Was Missing

About IBD Podcast Episode 79 – The Girl That Was Missing

Inflammatory bowel disease (IBD) affects more than the digestive system. Crohn’s disease or ulcerative colitis can also affect the eyes, joints, and skin. Jordan Ditty was diagnosed with IBD as a child, though her diagnosis floated between Crohn’s and ulcerative colitis and she had j-pouch surgery due to a colonic perforation. Recently, she had her j-pouch removed and a permanent ileostomy placed. Surgery gave her with a better quality of life but also a new diagnosis of a skin condition related to IBD, called pyoderma gangrenosum. Learn how Jordan remains hopeful through her long journey with IBD and a host of complications.

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About IBD - Podcasts to Listen to This Ostomy Awareness Day

Podcasts to Listen to This Ostomy Awareness Day

Ostomy Awareness Day is an important observation that helps eliminate the stigma surrounding ostomies and ostomates. Ostomy surgery is lifesaving and many people who have an ileostomy or colostomy surgery due to ulcerative colitis or Crohn’s disease experience improved quality of life.

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About IBD Podcast Episode 72 - I Had Contemplated Keeping It a Secret

About IBD Podcast Episode 72 – I Had Contemplated Keeping It a Secret

What has been your experience with ostomy surgery? If you know someone who lives with an ileostomy or a colostomy, you’ll likely get your impression about having a stoma from them. But what if that person struggles to accept their stoma? When Amber Wallace Ogle of The Ostomy Diaries was faced with ileostomy surgery to treat her Crohn’s disease, she was reminded of the negative experiences of her family members who lived with an ostomy. However, it didn’t take long after her surgery before she was embracing life again and working to show others that life with an ostomy can be fulfilling and beautiful. Amber tells her Crohn’s disease story, gives 5 tips for advocating online, and shares a message she received from a family that has been touched by her advocacy.

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About IBD Episode 66 - I Just Needed Something to Change

About IBD Podcast Episode 66 – I Just Needed Something to Change

Ostomy surgery can improve quality of life for people with IBD but it is still not discussed often enough, or early enough, in the disease process. This leaves patients to cope with the surgery and the acceptance of an ostomy during a time when they are already critically ill. For Austin Powers, who goes by The Ostomy Guy, he exhausted all his possibilities to treat complications from Crohn’s disease before having surgery to place an ostomy. It was several more years before a quick encounter with another ostomate set him on the journey of acceptance. Today, Austin runs a podcast and has written a book about his experiences, The Ostomy Guy Story: Memoirs of a Bagman, which is available on Amazon. Listen all the way to end to hear one of the many letters Austin receives from his readers, who are inspired by his story.

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AMBER: I’m Amber Tresca and this is About IBD. It’s my mission to educate people living with Crohn’s disease or ulcerative colitis about their disease and to bring awareness to the patient journey. My guest on this episode is Dr Selvi Vasudevan (VAHsooDAYven). Dr Selvi was diagnosed with Crohn’s disease in college and endured several surgeries and complicated recovery periods but she didn’t let it stop her from going to medical school. She was in the middle of a pediatric residency when the disease changed the course of her life again. She looked for more meaning and purpose in her journey and she found it by first finding her own way to healing and then by sharing what she’s learned with others. I caught up with Dr Selvi at Crohn’s and Colitis Congress in Austin, which is a medical meeting for healthcare professionals. We sat down for a chat in the press room. during our lunch break so you’ll notice that

About IBD Podcast Episode 64 – My Life Would Never Be the Same

Finding meaning in an illness journey can be a catalyst for purpose and hope. Dr Selvi Vasudevan endured severe Crohn’s disease that resulted in several surgeries and a relentless series of complications. She was on her chosen path when the disease stole her aspirations and left her without direction. A recommitment to herself and her own healing journey helped her find her purpose again as a healer and prompted her to found Cooking With Crohn’s in order to share what she’s learned with the IBD community.

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About IBD Episode 57 - I Really Don't Think About My Ostomy Anymore

About IBD Podcast Episode 57 – I Really Don’t Think About My Ostomy Anymore

Living with a permanent ileostomy as a result of Crohn’s disease hasn’t stopped Ryan Stevens from participating in the sport he loves. He worked his way back from crushing IBD flare-ups and multiple surgeries in order to train for the ultimate triathlon: the IRONMAN. In this second part of Ryan’s story, hear what happened to him while on the bike route, why the ostomy may actually provide an advantage, and Amber’s unfiltered thoughts on the competitiveness of the triathlon community.

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About IBD Episode 56 - This Is Still Better Than Surgery

About IBD Podcast Episode 56 – This Is Still Better Than Surgery

A diagnosis of Crohn’s disease and an ileostomy hasn’t stopped Ryan Stevens from competing in triathlon races. He swam competitively through high school and college and was sidelined by Crohn’s just after falling in love with triathlon. He’s worked his way back twice from devastating flare-ups to get back to swim, bike, run, and now to the ultimate race: the IRONMAN. Come with us as we relive the IRONMAN Triathlon in Madison, Wisconsin and discuss how Ryan prepared and competed while living with IBD and a permanent ostomy.

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