A few days ago, I was talking to an IBD friend and I said how weird it was for me to consider traveling.
“It feels like something other people do,” I said. “It’s not something that I get to do.”
It’s a mindset I’ve needed to overcome because traveling when I was younger and my ulcerative colitis was at its worst was a nightmare. Now I’ve had surgery to create a j-pouch and my disease is much better controlled.
There’s no reason I can’t go all the places and do all the things!
I still have to do some problem solving, though, so I thought I’d share some of the products I’ve found that made my life easier while bouncing around cities in the UK or heading up to Maine for a camping trip.
Have you ever been out in public and needed a toilet — but there wasn’t one available?
This has happened to everyone who lives with an inflammatory bowel disease (IBD, Crohn’s disease or ulcerative colitis), which is why so many of us have “bathroom accident” stories. Needing to use the bathroom is a basic human need, but it’s treated like an afterthought. That’s where the Restroom Access Act comes into play: a law passed in several states that allows people to request access to a toilet when they live with certain conditions.
There is no such law currently in California. That’s hopefully going to change thanks to the efforts of Ashlyn Saltzburg and Kelly Silk. Ashlyn is a teenager living with IBD and Kelly is her mom. Their effort to get a law passed in California is nothing short of heroic. Learn about how they got started on this journey to have the Restroom Access Act passed in California, and how you can help.
Send your letters of support for AB 1632 to Assemblymember Weber’s Legislative Assistant, Raymond G. Contreras: firstname.lastname@example.org
Living with inflammatory bowel disease (IBD) can mean it may be difficult to travel at times. There are many reasons why traveling could be challenging but one of the major problems is the lack of easy access to bathrooms. Public transportation tends to be notorious for not having restrooms and this can give people with IBD some anxiety. That’s why having a travel kit stocked and ready will help people living with Crohn’s disease or ulcerative colitis to have more confidence when making travel plans.
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