A few days ago, I was talking to an IBD friend and I said how weird it was for me to consider traveling.
“It feels like something other people do,” I said. “It’s not something that I get to do.”
It’s a mindset I’ve needed to overcome because traveling when I was younger and my ulcerative colitis was at its worst was a nightmare. Now I’ve had surgery to create a j-pouch and my disease is much better controlled.
There’s no reason I can’t go all the places and do all the things!
I still have to do some problem solving, though, so I thought I’d share some of the products I’ve found that made my life easier while bouncing around cities in the UK or heading up to Maine for a camping trip.
Living with inflammatory bowel disease (IBD) can mean it may be difficult to travel at times. There are many reasons why traveling could be challenging but one of the major problems is the lack of easy access to bathrooms. Public transportation tends to be notorious for not having restrooms and this can give people with IBD some anxiety. That’s why having a travel kit stocked and ready will help people living with Crohn’s disease or ulcerative colitis to have more confidence when making travel plans.
With an invisible illness such as IBD, it can be challenging to protect your quality of life. Patient influencers often push themselves in the service of others and that may seem strange to those that follow along on social media. How can someone be so sick and yet be able to attend a medical conference? Sara Ringer of Inflamed and Untamed explains how what you see online can be misleading and how she manages two difficult digestive diseases, all while striving to live a fulfilling life that includes being a resource for other patients seeking information and support.
Getting married is a joyful time in one’s life. Until you have to bring your IBD along when you shop for your wedding dress, that is. Learn how Crohn’s disease affected Jaime’s perceptions about body image throughout her life and how it all culminated in a trip to a bridal shop that left her angry and frustrated. Plus, we share our best tips for making the dress shopping, and eventual wedding day dress wearing, go more smoothly if IBD decides to make make an appearance.
Welcome to the year-end wrap up show! I put together clips from my first 14 shows that drop the heaviest knowledge bombs about how life with IBD affects us, our careers, our relationships, and our stress levels.
When you fly, do you board early? Once you get on the plane, what’s the first thing you do? What’s the second? Veteran traveler Jaime Weinstein, who lives with Crohn’s disease, answers these questions and more based on her personal experiences when flying the friendly skies.
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