Tag Archives: chronic illness

Blog Post - Chronic Illness and the Language of War

Chronic Illness and the Language of War

I don’t get to say how other people decide to refer to themselves. How someone defines their relationship to their disease or to themselves is none of my business. I don’t get to make decisions about language on behalf of anyone.

I do, however, get to decide how I refer to myself and to living with inflammatory bowel disease (IBD). I do get to be intentional about the words I use in my writing to describe these illnesses and how I see them in the context of the broader world. I do make decisions about the phrasing I choose to use in my work to create educational material for people living with digestive disease.

Continue reading
About IBD Podcast Episode 125 - Amber's Year in Books 2022

About IBD Podcast Episode 125 – Amber’s 2022 Reading List

What did you read over the past year? If you made a reading goal: did you hit it? The books I read this year ranged from self-help to true crime to science fiction. Hear more about some of the books I enjoyed in 2022 (and in the year after I was diagnosed with ulcerative colitis) and if you’ll want to pick them up for yourself.

Continue reading
About IBD Podcast Episode 97 Cover

About IBD Podcast Episode 97 – Wine, Biscuits, and Drinking Water With Author Kathleen Nicholls

Life with inflammatory bowel disease (IBD) brings challenges and many life changes but it can also sometimes bring unexpected opportunities.

Kathleen Nicholls, author of “Go Your Crohn Way: A Gutsy Guide to Living with Crohn’s Disease” and “My Flare Lady: a handbook for today’s (diseased) dame” was diagnosed with Crohn’s disease in her 20s. She started a blog as a way to process her disease journey. She was stunned when people started reading it and when publishers became interested. Two books later, she shares the lessons she learned along the way.

Continue reading
About IBD - This Is My Superpower

This Is My Superpower

Contained below are mild spoilers for the Season 2, Episode 4 episode of Farscape, “Crackers Don’t Matter.”

In 1999, my husband and I came home to his parents house after a night out. We found my mother in law watching the Sci-Fi Channel, as she often did in those days. The show that was on was Farscape. It was everything that the other sci-fi shows of the era were not. It was intelligent, bright, messy, sexy, funny, and relatable. I immediately fell in love with it.

The premise of the show is that John Crichton, astronaut, is testing his ship, called a “module,” in low Earth orbit, when he’s catapulted out of the galaxy through a wormhole. He winds up in deep space, immediately pisses off a high-ranking military officer, falls in with some escaped prisoners, and is off on an adventure.

Oh, and there’s no way to get home because nobody knows where Earth is located.

Continue reading