People who live with inflammatory bowel disease (IBD) have questions regarding COVID-19 vaccination and how it may be impacted by their disease or their medications. IBDologists recommend that people who live with Crohn’s disease or ulcerative colitis receive a vaccination for COVID-19. Check with your physicians on your individual circumstances but, in general, the advice is that the vaccines are safe and effective for people with IBD, and they are recommended.Continue reading
Telling your Crohn’s disease or ulcerative colitis story is powerful. It can be freeing but it can also come with some unexpected side effects.
Welcome back Rosanne Mottola, who originally intended to talk over receiving her second dose of the Pfizer BioNtech COVID-19 vaccine. She told her ulcerative colitis story and about receiving her first dose on Episode 87, “COVID-19 Vaccination With UC Patient Rosanne Mottola.” She gives her experience on her second dose, how it affected her, and what her family’s plans are now that she’s vaccinated.
Additionally, Rosanne had another part of her journey that she wanted to share. She listened to her first About IBD episode (something a lot of guests don’t actually do), as did her family. Reflecting on her ulcerative colitis journey brought things back in a fresh way. She tells me how revisiting some parts of her life in this way was both troubling and healing. It’s an important part of the disease journey, especially for those who tell their story publicly, that doesn’t often get discussed.Continue reading
I remember looking down at my abdomen shortly after having the first of two surgeries to complete the j-pouch procedure for treating ulcerative colitis. It was open surgery, so I had a line of staples closing the surgical site that was about 8 inches long. I spent most of those first weeks with a pillow clutched against my abdomen because it felt like my guts were going to fall out. I couldn’t imagine how I would ever complete a simple sit-up again.
Yet, I did recover. I can do the things that seemed beyond reach in those first days and weeks, but it didn’t happen right away or without effort. As the country becomes vaccinated against COVID-19 and we consider next steps, I am reminded of that feeling of having no idea how I would ever be whole again. Restarting a face-to-face life is off in the distance: hazy to the point of being unrecognizable. I’m struck by the similarities between resuming life after surgery and resuming life after a pandemic. They happen slowly, with the individual steps being so small they are almost imperceptible.Continue reading
During times of stress, our personal relationships may suffer. In the pandemic, we are finding ourselves spending a lot of time with those in our households, and for couples, that can start to take a toll. Certified sex educator Kait Scalisi, founder of Passion By Kait, shares her knowledge and experience as a neuroscientist, public health professional, and couples’ counselor to help us understand how to better manage our relationships during the pandemic and beyond.Continue reading
Crohn’s & Colitis Congress is a meeting focused on inflammatory bowel disease (IBD) that’s organized by the American Gastroenterological Association and the Crohn’s & Colitis Foundation. The meeting is geared towards healthcare providers who want to learn more about treating patients who live with IBD.
Ryan Ungaro, MS, MD, Assistant Professor of Medicine (Gastroenterology) at Icahn School of Medicine at Mount Sinai, gave a presentation at Crohn’s & Colitis Congress entitled “Understanding IBD-Related Care in the Era of COVID-19.”Continue reading
People who live with inflammatory bowel disease (IBD) have had many questions regarding the COVID-19 pandemic and the vaccine rollout is no different. The good news is that prominent IBD physicians are advocating for people who live with Crohn’s disease or ulcerative colitis to get vaccinated against SARS-CoV-2 (the virus which causes COVID-19). As healthcare professionals, many of them have already received a vaccine themselves.
After speaking with Dr David Rubin, highly respected IBDologist, fierce advocate for patients, and consummate educator who graciously responds to my emails, on About IBD, I became better aware of the concerns of the IBD community in regards to vaccination. I’ve spent the better part of the last month working towards answering questions and reading research.
To that end, I have come up with 5 nuggets of information that address some of the chief concerns about COVID-19 vaccinations in people who live with IBD.Continue reading
From the beginning of the COVID-19 pandemic, people with inflammatory bowel disease (IBD) have had many questions. Now that vaccines against the virus are becoming available, people living with Crohn’s disease or ulcerative colitis need even more information in order to make decisions. I asked Dr David Rubin, Chief of the Section of Gastroenterology, Hepatology & Nutrition and the Co-Director of the Digestive Diseases Center at The University of Chicago Medicine to answer some of these initial questions about the first COVID-19 vaccines (manufactured by Pfizer and Moderna). Topics discussed on this episode include:
- How vaccines work
- How mRNA works
- How IBD medications affect the immune system
- IBD medications and their potential effect on COVID-19 vaccination
- When we’ll have more information about COVID-19 vaccines and IBD
- Why side effects with vaccines are expected and what they mean
After hearing from my 10-year-old daughter, it’s now time to hear from my 13-year-old son. My kids are in hybrid school, and for my 8th grader, this means he goes to school in person two full days a week, with 3 days of distance learning at home. We are managing it as well as I think we can expect. However, my son brings up a small wrinkle in regards to the “return to normal” to which we are all looking forward. It is going to be challenging for us to go back to our prior pace and there will be new struggles along the way. Be sure to listen to the end to hear my son’s tips for parents on how to talk to their kids.Continue reading
How often do you check in with your friends and family about how they’re doing during the pandemic? Families have had to make difficult choices regarding school, playdates, and extracurricular activities. We are all concerned about how our kids are faring during the pandemic. But are we asking them about their worries and concerns as often as we should? Amber sits down with her 10-year-old daughter to talk about hybrid school, concerns about getting sick with COVID, what kids are missing right now, and what they want to do when the pandemic is over.Continue reading
Telehealth has become part of our new normal as we practice physical distancing during the COVID-19 pandemic. Several of the barriers that prevented us from being able to see our doctors for an appointment via a telephone call or a video call have now been managed. However, it’s still a new way to receive healthcare, and both patients and clinicians are adjusting. Learn from Neilanjan Nandi, MD, gastroenterologist and Associate Professor of Clinical Medicine at Penn Presbyterian Medical Center and the University of Pennsylvania about what patients can do to be ready for their telehealth appointments and what it’s like from the doctor’s side of the video conference call.Continue reading