Pregnancy while living with inflammatory bowel disease (IBD) feels scary. But thanks to the groundbreaking Pregnancy Inflammatory bowel disease And Neonatal Outcomes (PIANO) study, there is now so much more data and information to help moms and their doctors make decisions. Dr Mahadevan began the PIANO registry in 2007, which followed women and their babies through pregnancy and after. What was learned from this registry was how IBD medications, and especially biologics, affected pregnancy, birth, and infants. Learn how Dr Mahadevan has grown PIANO over the years, the most important findings so far, and how pregnant women can join the study and help the next generation of moms with IBD and their babies.Continue reading
Are we getting close to predicting how Crohn’s disease might change over time? Dr. Corey Siegel, co-director of the Inflammatory Bowel Disease Center at the Dartmouth Hitchcock Medical Center in Lebanon, New Hampshire, and Jessica Caron, a patient key opinion leader who lives with Crohn’s, discuss a prognostic tool called CDPATH. This tool may help patient and healthcare providers understand how the disease may change over the next few years, and better inform a discussion of treatment options.Continue reading
People with inflammatory bowel disease (IBD) are no strangers to fasting prior to procedures. Or, in some cases, to manage symptoms. How people cope with this time ranges from not wanting food anywhere near to them to binging cooking shows. But why?Continue reading
For years we were told that diet doesn’t matter in inflammatory bowel disease (IBD). We know now that diet is important in IBD. What’s still not clear is how we should be thinking about it in terms of management. Helena Murphy is a photographer, yoga teacher, and Crohn’s disease patient who brought her skills and experience to writing a book entitled, “The Plant-Based Crohn’s and Colitis Cookbook.” She shares her secret to publishing her book, as well as how her life has changed since being diagnosed with Crohn’s disease.
Caring for pelvic health is important for people of all genders who live with an inflammatory bowel disease (Crohn’s disease or ulcerative colitis). Dr. Amanda Olson, who holds a doctorate in physical therapy and is the President and Chief Clinical Officer for Intimate Rose, has dedicated her professional life to helping people improve their pelvic health. Learn more about pelvic therapy and how she has developed resources and tools to help people living with all types of conditions.
Find Amanda Olson, DPT, PRPC at:
- Instagram: @intimaterose
- Twitter: @IntimateRose
- Web: Intimate Rose
- Buy: Restoring The Pelvic Floor: How Kegel Exercises, Vaginal Training, And Relaxation, Solve Incontinence, Constipation, And Heal Pelvic Pain To Avoid Surgery
Find Amber J Tresca at:
- AboutIBD.com: About IBD
- Verywell: Verywell Health
- Facebook: @aboutIBD
- Twitter: @aboutIBD
- Pinterest: @aboutibd
- Instagram: @about_IBD
Find Mac Cooney (mix, sound design, and theme music) at:
- Facebook: @maccooneycomposer
- Instagram: @maccooneycomposer
- Web: Cooney Studio
- Theme music, IBD Dance Party, is from ©Cooney Studio.
Episode transcript and more information at: https:/bit.ly/AIBD126
These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.Continue reading
For some people living with Crohn’s disease or ulcerative colitis, the disease puts roadblocks in the way when it comes to going to school, having a career, and participating in sports. For Lauren Thibodeau, a diagnosis of ulcerative colitis led to a complication of medical catatonia, which derailed her life and her career as a college golfer. However, with her family, her medical team, and her teammates around her, she made her way back to the golf course and in fact, wound up playing better than ever. Lauren shares what kept her motivated during the long and difficult recovery and how it changed her perspective on her golf game as well as her outlook on life.Continue reading
You may not have heard of biomarkers before, but they are a key part of managing your Crohn’s disease, ulcerative colitis, or indeterminate colitis (inflammatory bowel disease, or IBD).Continue reading
We all have goals in life. Inflammatory bowel disease (IBD) can sometimes get in the way. It’s not ideal, but that’s the reality.
However, the goal of treatment should be to get us back to doing what we love to do, and minimize the effects of Crohn’s disease or ulcerative colitis on our lives. Our doctors also have goals for us. These goals might be different, but they’re all important in getting symptoms and inflammation minimized and living life on our terms again.Continue reading
One of the biggest hurdles in getting a diagnosis of inflammatory bowel disease (IBD) is first in understanding that the symptoms aren’t normal. They’re not from a virus or a parasitic infection — they go on for too long for it to be from those causes.Continue reading
Once people understand that symptoms like ongoing diarrhea and bloody stools are not normal, they need a way to overcome embarrassment and talk their symptoms over with a health care provider. Having an open and honest conversation will help ensure a quicker diagnosis of ulcerative colitis and getting the right treatment.
On this episode, Rasheed Clarke, ulcerative colitis and j-pouch patient and author of Three Tablets Twice Daily and Dr Christina Ha, an IBDologist at the IBD Center at Cedars Sinai, provide support and guidance to patients with IBD symptoms, newly diagnosed patients, and anyone who is looking for a new way to speak with their health care providers about IBD treatments.Continue reading