Emergency room visits are a source of stress and can lead to fragmented care. Amber speaks with psychologist Dr Stephen Lupe to learn why inflammatory bowel disease (IBD) patients avoid the ER, the reality of medical trauma, and how a multi-disciplinary approach like the IBD Medical Home can revolutionize patient care.
Amber Tresca talks with Andrew Giffin, a product manager in Toronto who was diagnosed with Crohn’s disease at 19 after years of symptoms in high school. Andrew shares his experience navigating three major surgeries, adjusting his career path away from law enforcement, and learning to manage stress as part of living with a chronic illness. He also discusses developing apps, including Brown Note, a free, anonymous peer-support app for people with digestive diseases. Brown Note was inspired by his own feelings of isolation while preparing for his third surgery and is available on Apple, Android, and the web.
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After a devastating Crohn’s disease flare, marketing executive Bari Gratton traded a high-stress career for the healing path of yoga therapy in California. Bari joins Amber Tresca to discuss the “Five Layers of Being,” the toxicity of “pushing through,” and how she is building community for the next generation of IBD patients.
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Katryna Loewen, a registered nurse diagnosed with ulcerative colitis in 2020, shares her journey through severe flare-ups, incontinence, and her decision to have a colectomy and ileostomy in 2024. She discusses the emotional and physical challenges of living with IBD, the stigma of ostomies, and how these experiences shaped her life, relationships, and career. Katryna also describes managing her mental health, planning her wedding, and preparing for motherhood, offering hope and practical advice to others with IBD.
Living with inflammatory bowel disease (IBD) is a journey. Every person has their own path, but there are some common themes, including physical pain, emotional challenge, and a sense of isolation or loneliness. We often need ways to cope with all of these things, which can include more formal techniques but also things that we can do by ourselves to find an outlet for difficult emotions and experiences.
I talked with Daniel Leighton—painter, augmented reality artist, filmmaker, technologist, and long-time Crohn’s disease patient—to explore why art is a powerful tool for processing trauma, expressing emotions, and finding hope in the setting of chronic illness.
Drawing on Daniel’s tips and experiences, this post breaks down the main themes and actionable tips for anyone interested in using art for healing and self-understanding, regardless of artistic skill.
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Living with a chronic illness like inflammatory bowel disease (IBD) is isolating. Not only are there stigmatizing physical symptoms, but there’s an emotional toll. It’s challenging for patients to find understanding and support in their everyday lives.
In episode 184 of About IBD, I sat down with Crohn’s patient and advocate Aaron Blocker to talk about the role of online community. Aaron shares his journey in building an online support group for people with IBD, including the successes and the frustrations.
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Community can help people with IBD access disease information and feel less alone. Amber talks with Aaron Blocker about the importance of finding and creating community for those living with IBD. They explore how online groups provide support and counter misinformation, while also discussing the importance of being cautious when sharing personal experiences online. They emphasize the importance of authenticity, learning from mistakes, and prioritizing the well-being of others.
Living with inflammatory bowel disease (IBD) is a complex journey that extends beyond physical symptoms. IBD affects us as whole people, not just digestive systems.
On The Mind-Body Connection in IBS and IBD Featuring Ali Navidi, PsyD – About IBD Podcast Episode 178, Dr. Ali Navidi, a gastropsychologist and co-founder of GI Psychology, discusses the often-overlooked mental health challenges that come with an IBD diagnosis. Patients, caregivers, and healthcare professionals will all come away with a deeper understanding of the gut-brain connection and practical strategies for holistic care.
This blog post covers some of the themes and expert advice from the episode, offering in-depth guidance and actionable tips for managing the mental health aspects of IBD.
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Victoria, from the patient-led, charitable organization GetYourBellyOut, shares her journey with ulcerative colitis. She describes the unique role of patient advocacy and the importance of community support, as well as the innovative projects that GetYourBellyOut is undertaking to bridge the gap between patients and healthcare providers.
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People with chronic illness are innovative. We have to be, because even though we have limited resources available to us, we’re often expected to achieve at the same level as people who are healthy.
In Episode 172 of About IBD, I talk to Rachel Bee. Rachel was diagnosed with Crohn’s disease at the age of 13. She successfully navigates the challenges of living with IBD while also becoming an entrepreneur. She founded Infusion Hero, a business dedicated to creating specialized hoodies for young patients undergoing infusions.
This blog post outlines some insights from Rachel, including valuable advice and inspiration for budding entrepreneurs.
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