Tag Archives: research

Ethics, Privacy, and AI in Healthcare: What Patients Should Know

Ethics, Privacy, and AI in Healthcare: What Patients Should Know

Whether you’re an avid user or avoid it as much as possible, artificial intelligence (AI) is here to stay.

When the telephone was new, some people resisted its use. They thought it had no practical use, that a telegraph was a better way of sending messages, and that it was dangerous and would intrude on privacy. [1]

It’s almost funny and quaint to think about these concerns now. The telephone changed the world. It brought opportunities for business growth and made people safer and more connected. Yet people sabotaged phone lines and refused to install them. [1]

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How Propel a Cure is Transforming Crohn's Disease Research - About IBD Podcast Episode 180

How Propel a Cure is Transforming Crohn’s Disease Research – About IBD Podcast Episode 180

Grassroots organizations are an important part of the IBD landscape, helping fill in the many gaps in our underserved community. Amber talks with Angela Clark, president and CEO of Propel a Cure, a grassroots nonprofit that funds research projects looking for the causes of Crohn’s disease. They discuss the challenges of finding cures for IBD and the importance of supporting innovative, early-stage research. Angela explains their grant selection process, highlights current research they fund, and shares how the organization communicates complex science to the IBD community.



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The Need for Intersectional Research in IBD

The Need for Intersectional Research in IBD

In a recent episode of About IBD, I had the privilege of talking with Cass Condray, a passionate advocate and researcher. Cass, who not only works in IBD research but also lives with the condition, shared his insights into the unique challenges faced by the LGBTQIA+ community who live with IBD.

One of the issues highlighted in our conversation was lack of research. There’s little in the way of study looking at how IBD affects sexual and gender minorities, which influences healthcare outcomes and quality of life.

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About IBD Podcast Episode 168 - Why Representation Matters for the LGBTQ+ Community - Featuring Cass Condray

Why Representation Matters for the LGBTQ+ Community – About IBD Podcast Episode 168

There’s a need for more research addressing social determinants of health in the inflammatory bowel disease (IBD) community. Cass Condray, an IBD researcher who also lives with an IBD, points out the lack of information and resources focused on the unique experiences of LGBTQ patients. Cass also talks about the significance of representation in research, and the impact that intersecting identities have on people’s health outcomes. Plus, we talk about Cass’ web site, PrideAndPoop.com, what his hopes are for the future, and what there is to do in Oklahoma.

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About IBD Podcast 136 - Pregnancy and IBD: The PIANO Study With Uma Mahadevan, MD

Pregnancy and IBD: The PIANO Study With Uma Mahadevan, MD – About IBD Podcast Episode 136

Pregnancy while living with inflammatory bowel disease (IBD) feels scary. But thanks to the groundbreaking Pregnancy Inflammatory bowel disease And Neonatal Outcomes (PIANO) study, there is now so much more data and information to help moms and their doctors make decisions. Dr Mahadevan began the PIANO registry in 2007, which followed women and their babies through pregnancy and after. What was learned from this registry was how IBD medications, and especially biologics, affected pregnancy, birth, and infants. Learn how Dr Mahadevan has grown PIANO over the years, the most important findings so far, and how pregnant women can join the study and help the next generation of moms with IBD and their babies.

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Episode 128 - About IBD Podcast Episode Cover

About IBD Podcast Episode 128 – CDPATH: A Prognostic Tool for Crohn’s Disease

Are we getting close to predicting how Crohn’s disease might change over time? Dr. Corey Siegel, co-director of the Inflammatory Bowel Disease Center at the Dartmouth Hitchcock Medical Center in Lebanon, New Hampshire, and Jessica Caron, a patient key opinion leader who lives with Crohn’s, discuss a prognostic tool called CDPATH. This tool may help patient and healthcare providers understand how the disease may change over the next few years, and better inform a discussion of treatment options.

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About IBD Podcast Episode 121 Cover

About IBD Podcast Episode 121 – IBD and Biomarkers: What You Need to Know With Andres Hurtado-Lorenzo, PhD

What if we knew which patients would have severe Crohn’s disease or ulcerative colitis? And which wouldn’t? How about if we could tell which drug would work best in which patient? Knowing these things would change how inflammatory bowel disease (IBD) is diagnosed and treated. Plus, more importantly: it would improve lives. Dr Andres Hurtado-Lorenzo, Vice President of Translational research and IBD Ventures at the Crohn’s and Colitis Foundation explains biomarkers and how they may play into the future of how IBD is diagnosed, managed, and treated.

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About IBD Podcast Episode 102 Cover

About IBD Podcast Episode 102 – Finding Success with Nutrition Therapy – Dannielle Jascot, MS, CNS, CDN

IBD is not a condition that is easy to diagnose or treat. People who live with Crohn’s disease or ulcerative colitis have needs that include guidance on nutrition. Diet is notoriously difficult to study but some research is starting to be done. Dannielle Jascot, MS, CNS, CDN, certified nutritionist and IBD patient talks over the recent results of the DINE-CD study, which compared the Specific Carbohydrate Diet and the Mediterranean Diet.

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About IBD Podcast Episode Cover - Episode 93 - Motherhood Unplugged With Natalie Hayden

About IBD Podcast Episode 93 – Motherhood Unplugged With Natalie Hayden

It’s one thing to talk to your physicians about becoming pregnant when you live with ulcerative colitis or Crohn’s disease. But what about  getting the benefit of experiences from the mothers who have been through a pregnancy, birth, and breastfeeding journey? Former news anchor and current blogger and Crohn’s patient Natalie Hayden gives her experiences with pregnancy and receiving biologics, as well as how she has participated in research during her pregnancies and the benefits it offers her family.

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