Tag Archives: ulcerative colitis

About IBD Podcast Episode 106 - Every Kid We Take Care of, We Become Part of Their Family

About IBD Podcast Episode 106 – Every Kid We Take Care of, We Become Part of Their Family

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How is IBD different in kids than it is in adults? When should kids be transitioned from pediatric to adult care? What’s next for IBD treatments? My guest is Dr Jeffrey Hyams, the head of the Division of Digestive Diseases, Hepatology and Nutrition at Connecticut Children’s, and a Professor of Pediatrics at the University of Connecticut School of Medicine. He provides a historical perspective on the treatment of IBD and is able to highlight how therapies have advanced over the last 30 years. He also gives some ideas about what’s on the horizon for IBD treatments and what gives him hope for the future.

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About IBD - Who Is the Base of Your Pillar?

Who Is the Base of Your Pillar?

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In the spring of my junior year in high school, I met with my senior year Advanced Placement English teacher. I don’t remember much of that meeting, such as what we talked about, or even its purpose.

What I do remember is the store room she took me into.

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About IBD Podcast Episode 105 - What Remission Means to a Teen With Ulcerative Colitis

About IBD Podcast Episode 105 – What Remission Means to a Teen With Ulcerative Colitis

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Inflammatory bowel disease (IBD, Crohn’s disease, ulcerative colitis, and indeterminate colitis) is being diagnosed in young people with greater frequency. Research on how to treat pediatric patients, and indeed how to prevent IBD in the first place, is still lacking. What’s not in short supply is the strength and resilience shown by pediatric IBD patients and their families. Meet Brooke, a pediatric patient at Connecticut Children’s Hospital who credits her dedicated IBD team with her ability to live a life filled with summer camp, dance, and tennis lessons, without the symptoms of ulcerative colitis. 

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Behind the Scenes of Healthcare Disparities in IBD

Behind the Scenes of Healthcare Disparities in IBD

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In 2018, I was doing on-site interviews for About IBD Podcast. I was attending a medical conference and there were several other patient influencers there as well. It was an opportunity to get a lot of audio recorded for production of several upcoming episodes.

I love recording in person. I’ve recorded in all sorts of spaces: show floors, hallways, and press rooms. I try to use my own hotel room, or even my basement, when I can and when it makes sense. I was conducting interviews in my room in Chicago when Shawntel Bethea and Brooke Abbott, of The Crazy Creole Mommy Chronicles, showed up at my door.

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About IBD Podcast Episode 104 - Lt Col Joshua Nelson

About IBD Podcast Episode 104 – Living With Ulcerative Colitis as an Air Force Pilot With Lt Col Joshua Nelson

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Did you know that being diagnosed with ulcerative colitis or Crohn’s disease is a disqualifying condition to serve in the United States military? However, it seems that it’s not always an automatic reason for discharge. Lt Colonel Joshua Nelson was diagnosed with ulcerative colitis and needed to have ileostomy surgery. It cast into question his future as a pilot in the Air Force Reserve. Learn his story of how he worked with his medical team in order to keep doing the job he loves, his advice for others like him, and tips on flying that any ostomate can use.

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About IBD Podcast Episode 103 Cover

About IBD Podcast Episode 103 – J-Pouch Surgery for Ulcerative Colitis With Vikram B. Reddy, MD, PhD

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Ulcerative colitis surgery is sometimes viewed as the last stop for treatment but it can be a good option to treat inflammatory bowel disease (IBD). Dr. Vikram Reddy, Division Chief of Yale Medicine, Colon and Rectal Surgery, answers questions about j-pouch surgery including how patients feel about it, how he manages his patients after surgery, what complications might occur, and why surgery for ulcerative colitis is complicated and nuanced.

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About IBD Podcast Episode 102 Cover

About IBD Podcast Episode 102 – Finding Success with Nutrition Therapy – Dannielle Jascot, MS, CNS, CDN

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IBD is not a condition that is easy to diagnose or treat. People who live with Crohn’s disease or ulcerative colitis have needs that include guidance on nutrition. Diet is notoriously difficult to study but some research is starting to be done. Dannielle Jascot, MS, CNS, CDN, certified nutritionist and IBD patient talks over the recent results of the DINE-CD study, which compared the Specific Carbohydrate Diet and the Mediterranean Diet.

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J-pouch Patient Bill of Rights Of Support

J-pouch Patient Bill of Rights

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I was overdue.

All of us who live with chronic illness know understand the difficulties of working in all the appointments and procedures. Even when doing OK, there’s a list to get through every year. Now with being over 40 years old, that list also continues to expand. 

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About IBD Podcast Episode 101 - Barbara Olendzki, RD, MPH, LDN - Every Mom Matters: The MELODY Trial

About IBD Podcast Episode 101 – Barbara Olendzki, RD, MPH, LDN – Every Mom Matters: The MELODY Trial

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What should people who live with inflammatory bowel disease (IBD) eat? What diet plans are available? Barbara Olendzki, the Director of the Center for Applied Nutrition and an Associate Professor at the University of Massachusetts Chan Medical School, helped developed the inflammatory bowel disease anti-inflammatory diet (IBD-AID). The IBD-AID is currently being studied in pregnant people in the MELODY Trial. Barbara gives the lowdown on the IBD-AID, the MELODY Trial, and how and why she got started in the nutrition field.

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About IBD Podcasts Featuring Men's Voices

Men’s Health on About IBD Podcast

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Men face particular challenges when it comes to their health. Looking at health statistics in the United States, men are less likely to have health insurance than women. They’re also more likely to have high blood pressure, smoke, and drink alcohol. Men also see a doctor less often than women. There are a variety of reasons for these disparities but the end result is that men might face more health problems.

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