After being diagnosed with ulcerative colitis, Victoria felt isolated and overwhelmed. She turned to social media to connect with the IBD community.
That led her to work with others in the IBD community to create #GetYourBellyOut. Their goal was to make some noise and get attention for Crohn’s disease and ulcerative colitis outside of the GI community.
Continue reading
Victoria, from the patient-led, charitable organization GetYourBellyOut, shares her journey with ulcerative colitis. She describes the unique role of patient advocacy and the importance of community support, as well as the innovative projects that GetYourBellyOut is undertaking to bridge the gap between patients and healthcare providers.
Continue reading
Amber and gastroenterologist Dr Neil Parikh discuss technology’s impact on IBD management. Dr Parikh emphasizes the importance of patient diaries and open communication between patients and providers. They also address concerns about data privacy, integrating holistic approaches in patient care, and the potential of wearable technology in gastroenterology.
Continue reading
We can say, without any doubts, that diet does matter in IBD.
On About IBD Episode 173, I talk with Stacey Collins, a dietitian specializing in nutrition for people living with inflammatory bowel disease (IBD), jpouch, and ostomy. Stacey herself has a jpouch after a long journey with managing ulcerative colitis.
In this companion blog post for the podcast episode, I break down the key insights and advice about diet and IBD from our conversation.
Continue reading
People with Crohn’s disease or ulcerative colitis (forms of inflammatory bowel disease, or IBD) were told for many decades that diet didn’t affect the disease. Even today, some patients are still told this, even though there is now significant evidence that diet absolutely matters in IBD. Stacey Collins, MA, RDN/LDN describes how her journey with ulcerative colitis led to j-pouch surgery. Her philosophy as a registered dietitian is one of “nutrition by addition” rather than by dietary restriction. Stacey also focuses on the emotional aspects of eating with IBD, including the understandable fear and anxiety around food.
Continue reading
People with chronic illness are innovative. We have to be, because even though we have limited resources available to us, we’re often expected to achieve at the same level as people who are healthy.
In Episode 172 of About IBD, I talk to Rachel Bee. Rachel was diagnosed with Crohn’s disease at the age of 13. She successfully navigates the challenges of living with IBD while also becoming an entrepreneur. She founded Infusion Hero, a business dedicated to creating specialized hoodies for young patients undergoing infusions.
This blog post outlines some insights from Rachel, including valuable advice and inspiration for budding entrepreneurs.
Continue reading
It’s not easy to manage both a career and chronic illness like inflammatory bowel disease (IBD, Crohn’s disease, or ulcerative colitis). We need tools and tips in order to keep everything moving and succeed at work while caring for ourselves. I talk with Jen Hubley Luckwaldt about how freelancing can be a valid way of meeting both goals. Jen shares her journey from traditional employment to freelancing, including how it offers her flexibility in balancing work, health, and family. We talk about the importance of setting boundaries with clients, how to identify your marketable skills, and building a supportive community. Jen emphasizes the value of an abundance mindset in freelancing and offers practical tips for finding work and managing time effectively. If you’ve ever wondered how you can manage to work while still making it to infusions and appointments: we have a roadmap for you.
On About IBD Podcast Episode 170, I talk to Lisa Zawrotny, a productivity coach, founder of Positively Productive Systems, and host of the Positively Living Podcast. We talk about how people living with inflammatory bowel disease (IBD, Crohn’s disease, ulcerative colitis) or other chronic illnesses have unique challenges when it comes to productivity. Our discussion focuses on how to manage stress and clutter effectively when coping with low energy and flare-ups. Lisa shares her personal journey as a caregiver for her mother with Alzheimer’s and her experiences with chronic pain, which have profoundly influenced her approach to productivity coaching. In this post, I break down the key insights and actionable advice shared in the episode.
Continue reading
Do you find it difficult to find the time and energy to deal with mental or physical clutter? Lisa Zawrotny, a productivity coach and founder of Positively Productive Systems, helps us learn how to manage clutter, even when flaring. We discuss practical strategies for decluttering both your physical space and mental load, and how to celebrate even the smallest victories in your day-to-day life. Plus, Lisa reveals her insights on creating systems that work for you, no matter your circumstances. If you’ve ever felt weighed down by expectations or struggled to find balance, this episode is packed with valuable takeaways that can help you reclaim your time and energy.
Continue reading
In a recent episode of About IBD, I had the privilege of talking with Cass Condray, a passionate advocate and researcher. Cass, who not only works in IBD research but also lives with the condition, shared his insights into the unique challenges faced by the LGBTQIA+ community who live with IBD.
One of the issues highlighted in our conversation was lack of research. There’s little in the way of study looking at how IBD affects sexual and gender minorities, which influences healthcare outcomes and quality of life.
Continue reading