For some people with inflammatory bowel disease (IBD, Crohn’s disease, ulcerative colitis, or indeterminate colitis), yearly healthcare costs are exorbitant. This is true for myself, as there are yearly tests, check ups, and medications that insurance doesn’t fully cover.
For this reason, I’ve been using the Flexible Spending Account (FSA) program for many years. The FSA program is offered through an employer, similar to insurance plans. Every year, either as an individual or as a family, you decide on a dollar amount that will be automatically pulled from your paycheck and placed into a holding account.
Are we getting close to predicting how Crohn’s disease might change over time? Dr. Corey Siegel, co-director of the Inflammatory Bowel Disease Center at the Dartmouth Hitchcock Medical Center in Lebanon, New Hampshire, and Jessica Caron, a patient key opinion leader who lives with Crohn’s, discuss a prognostic tool called CDPATH. This tool may help patient and healthcare providers understand how the disease may change over the next few years, and better inform a discussion of treatment options.
People with inflammatory bowel disease (IBD) are no strangers to fasting prior to procedures. Or, in some cases, to manage symptoms. How people cope with this time ranges from not wanting food anywhere near to them to binging cooking shows. But why?
For years we were told that diet doesn’t matter in inflammatory bowel disease (IBD). We know now that diet is important in IBD. What’s still not clear is how we should be thinking about it in terms of management. Helena Murphy is a photographer, yoga teacher, and Crohn’s disease patient who brought her skills and experience to writing a book entitled, “The Plant-Based Crohn’s and Colitis Cookbook.” She shares her secret to publishing her book, as well as how her life has changed since being diagnosed with Crohn’s disease.
Caring for pelvic health is important for people of all genders who live with an inflammatory bowel disease (Crohn’s disease or ulcerative colitis). Dr. Amanda Olson, who holds a doctorate in physical therapy and is the President and Chief Clinical Officer for Intimate Rose, has dedicated her professional life to helping people improve their pelvic health. Learn more about pelvic therapy and how she has developed resources and tools to help people living with all types of conditions.
Find Amanda Olson, DPT, PRPC at:
Find Amber J Tresca at:
Find Mac Cooney (mix, sound design, and theme music) at:
Episode transcript and more information at: https:/bit.ly/AIBD126
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Many inflammatory bowel disease (IBD) patients receive medication. Which drugs, in what dosage and their combination, is individualized.
Almost everyone would probably prefer to not take any medications at all. However, IBD is complicated to treat, and there is potential for serious complications with untreated Crohn’s disease or ulcerative colitis.
Still, there are some patients who want to discontinue their IBD medications. And this might be a valid goal — if they can get into deep remission.
There’s one question that I’ve been asked many times, and it’s one that I also ask others when I conduct interviews:
“What advice would you give to people who are newly diagnosed with Crohn’s disease or ulcerative colitis?”
I see the importance of getting both new and veteran patients to give their experience with a new diagnosis of inflammatory bowel disease (IBD). It might be fair to say that most people, in hindsight, whether this is weeks or decades later, can point out where their journey could have been improved.
What did you read over the past year? If you made a reading goal: did you hit it? The books I read this year ranged from self-help to true crime to science fiction. Hear more about some of the books I enjoyed in 2022 (and in the year after I was diagnosed with ulcerative colitis) and if you’ll want to pick them up for yourself.
At the end of the year, we see the gift guides come out. There’s one for every type of person, usually focused on age and gender, but also based on hobbies or interests. Or, even, based on chronic illness such as inflammatory bowel disease (IBD).
There’s no doubt, gift guides are helpful. For someone like me, who doesn’t go out shopping a lot, it’s useful to know what’s out there. Learning about the latest in cookware or video games can be helpful. To me, the funniest ones are the gift guides for teens or college students. Even I know they just want cash.
For some people living with Crohn’s disease or ulcerative colitis, the disease puts roadblocks in the way when it comes to going to school, having a career, and participating in sports. For Lauren Thibodeau, a diagnosis of ulcerative colitis led to a complication of medical catatonia, which derailed her life and her career as a college golfer. However, with her family, her medical team, and her teammates around her, she made her way back to the golf course and in fact, wound up playing better than ever. Lauren shares what kept her motivated during the long and difficult recovery and how it changed her perspective on her golf game as well as her outlook on life.